No suggestions sorry Bayley, I'm in Europe and my little country is dismal for doctors. I assume you are in USA so at least you should have access to some top ones with good records, or even (and not too far away) the WPI.
I've been thinking just about this lately and I'm optimistic that some semi standardized form of treatment will be available. Thats allowing for the different expressions of ME/CFS.
My country even will be embarrassed into acting. I'm working on it!