Science YouTuber Dianna Cowern after 2 years ME/CFS

[southwestforests]

From just a little bit ago today, I'm only a couple minutes in to the video,

 

[dt_96]

So good to hear she's improving, such an amazing individual.
It's definitely weird to actually see the progression of the illness. I never got as bad as Dianna but the her story still resonates, guessing it will for a lot of people. Glad Dianna put her story out there to help others

 

[Rufous McKinney]

Brain Fog= so much for your PHD.

Executive Functions are severely impaired. Thats pretty much everything that we do when we think about an issue, plan out a strategy and then Execute It.

 

[Rufous McKinney]

I'm only a couple minutes in to the video,

I'm now at minute 4 and the video is going on alot. I'm very glad she's doing so much better. I don't seem to be making it to how Was That Possible?

 

[Mathew]

I don't seem to be making it to how Was That Possible?

There doesn't seem to be any specific "how" in the video, - just patience and luck, I guess. But it's really good to see. I used to watch all her physics videos. Gives me hope.

 

[southwestforests]

There doesn't seem to be any specific "how" in the video, - just patience and luck, I guess

Somewhere in the past couple years there are a few videos about efforts made, husband Kyle did a lot, meaning A LOT of work helping, researching, and such.

Memory says there are one or two videos on Dianna's channel, at least one by Simone Giertz on her channel, or maybe one by her on Dianna's channel. Destin, whose last name I forget, of the Smarter Every Day channel did a video.

And yes, given how this disease runs so variably among those who have it, this improvement could well be luck as much as anything else or even luck alone.

 

[Vladimir]

I believe it was the stellate ganglion block procedure that triggered her recovery:

https://www.facebook.com/video.php?v=1060587922282613

I wonder if anyone on this forum has undergone a similar procedure, and what the results were.

 

[dt_96]

She has a separate X account for her personal/illness posts for anyone interested https://x.com/diannahaze

https://x.com/diannahaze/status/1887162936155660593

Definitely not a cure but another treatment option, sounds like it helped her make the turn into moderate, another clue to the illness.

 

[cfs since 1998]

From Cleveland Clinic (my emphasis):

A stellate ganglion block (SGB) is an injection of anesthetic medication into a collection of nerves called the stellate ganglion. These nerves are located in your neck, on both sides of your voice box. The injection can help relieve pain in your head, neck, upper arm and upper chest. It also can help increase circulation and blood flow to your arm.

Providers also use (stellate ganglion block) injections to treat circulation problems, pain symptoms and conditions or nerve injuries, including:

• Complex regional pain syndrome type I (formerly known as reflex sympathetic dystrophy) or type II (formerly known as causalgia).
• Peripheral vascular (artery) disease.
• Phantom limb pain.
• Postherpetic neuralgia.
• Chronic post-surgical pain.
• Hyperhidrosis.
• Raynaud’s syndrome.
• Scleroderma.
• Cluster headaches.
• Orofacial pain (pain perceived in your face and/or mouth).
• Atypical chest pain.
• Ménière’s disease.
• Intractable angina.
• Refractory cardiac arrhythmias.