Bob
Senior Member
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ME Action (set up by Jen Brea) is making waves.
Lobbyists seek new funds for chronic fatigue syndrome research
By Emily Underwood
17 August 2015
http://news.sciencemag.org/biology/...n-new-funds-chronic-fatigue-syndrome-research
Extracts:
Lobbyists seek new funds for chronic fatigue syndrome research
By Emily Underwood
17 August 2015
http://news.sciencemag.org/biology/...n-new-funds-chronic-fatigue-syndrome-research
Extracts:
Patient advocates and scientists joined forces today in a new campaign to boost research funding for the mysterious and debilitating disease chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME). The group aims to increase research funds available for CSF/ME from the $5.4 million annually available today. It also wants to transfer responsibility for the disease from an isolated office within the U.S. Department of Health and Human Services (HHS) to the National Institute for Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health (NIH).
We really need NIH to fund research in this area—there’s a lot of critically ill patients,” says Ronald Davis, a biochemist and geneticist at Stanford University in Palo Alto, California, and one of the signatories in an open letter to U.S. senators affirming the need for more CSF/ME funding.
Read more: http://news.sciencemag.org/biology/...n-new-funds-chronic-fatigue-syndrome-researchccording to the lobby group, #ME Action, NIH has long justified its relatively low funding for CSF/ME research by citing a paucity of interest among scientists in the disease, and too few high-quality grant proposals.