rest/adrenaline/PEM

bensmith

Senior Member
Messages
1,547
Asking about rest as treatment, but maybe it would be better in a dif sub?

Wake up, feel like crap, roll over couple times, crash i think, feel better, fall back asleep, wake up feeling pretty ok. I am in bed now all the time, only leave to poop. i get on computer sometimes, watch live cams sometimes, talk to family sometimes. last week it was obv when I was over doing it. I could feel it, and only after a couple mins. Now, I only feel that after extensively more activity(or fresh in the morning when anything sets me off). is this adrenaline, or just came out of the wave in a new base? before i'd have adrenaline, but it was much more obv and would lead to a heavy crash. now, pretty sure that's not happening. I can still push beyond my limits, but could they go from essenially nothing to much more? what about earlier in the day when I feel terrible then it goes away after I think or roll over? that is crashing right? am I just in a constant state of adrenaline now?

Should my goal still be to be resting in bed no stimulation? It sucks but I need to try and hit that marker? Or am I fine in relaxing on computer/slowtv etc now a good chunk of the time? Do I need to try and treat myself at my worst moment, right when I wake up? Only reason I feel better is because adrenaline? Is my base my morning when it's all crap, but i can't tell the rest of the day because of adrenaline?

Just can't tell if i'm worse or better. i feel better, way better than the last 3 weeks, but more symptoms now.
 
Last edited:

Judee

Psalm 46:1-3
Messages
4,590
Location
Great Lakes
We had someone on here a while back say he got better after many months by resting in bed for 45 minutes doing no activity at all followed by 15 minutes of very light activity.

I think I remember he did it for maybe 9 months before he got better--but he did get better!!!

You could try something like that but adapt it to you--where for now, you might do just 5 minutes of activity an hour including the essentials. So if this hour you had a toilet break you would wait til next hour to talk to someone or look at your computer. (Don't forget to eat and stay hydrated!!!)

I know it's tedius but where you just started to crash so badly in the last 3 weeks doing this now may help you turn the corner that much sooner. So many of us made ourselves worse by continuing to push.
 

bensmith

Senior Member
Messages
1,547
Thanks as always @Judee :)Ok, I had actually tried that in the 3 weeks but it didn't work. I tried 2 min on 30 mins off. now all of a sudden, I can go for...i don't know a lot longer. like, an hour maybe 2 before I need to rest. I can still overdo it, like I did today, but the crash isn't as bad. I think i'll try and get back into that routine to see what happens, it's just really weird to swing so wildly. I am also terrlble in the mourning and still picking up symptoms, so confusing.

just really weird because I didn't build to here. I still can't walk or get out of bed, and still need strict pacing with family talk, visual tv stuff(like slowtv) etc. but i can now surf for an hour or two at least without getting tired, still a lot better than two weeks ago. Just hope it's not fools gold. Like I still haven symptoms? Just not constantly/as easily thrown into the pit of despair.
 
Last edited:

Judee

Psalm 46:1-3
Messages
4,590
Location
Great Lakes
Oh, that's good news and so encouraging. In that case, I would say to have some type of timer on your computer that tells you when it's time to rest. Maybe for 15-20 minutes every 60-90 minutes.

I know it's difficult to shift gears like that. It sometimes seems to short circuit my brain if I have to. Anyway just work out what works best for you.

Also mornings are horrible for most of us. Something another member said recently made me realize that I actually procrastinate on going to bed because in the back of my mind I know I'm going to wake up feeling much, much worse in the first half of the next day.
 
Back