(Reporting of adverse reactions) "In Reporting Symptoms, Dont Patients Know Best?"


Senior Member
Posted on Co-Cure on April 14:

_Second Opinion - In Reporting Symptoms, Don’t Patients Know Best? -
NYTimes.com_ (http://www.nytimes.com/2010/04/13/health/13seco.html?emc=eta1)

Karen M. Campbell
Sacramento, Calif.
CFSFacts -- dispelling the myths and providing the facts Now on Facebook http://www.facebook.com/home.php?sk=lf#!/pages/CFS-Facts/491983490593?ref=nf
Blogging at http://cfs-facts.blogspot.com/

I thought this was interesting. Also make sure to check out the graphic.

It is all about the issue of reporting adverse reactions to drugs.
Of course, in the ME/CFS area, the outcome measures used to make the claim that GET and CBT based one GET are evidence-based are patient report outcome measures which the researchers are happy to use; but then the same researchers tend to play down the significance of patients reporting adverse reactions to the same treatments (although this happens more in the lay media/outside of the literature, as I recall - reports of adverse reactions don't tend to be mentioned too much in the literature. Peter White did try to play it down in the Journal of Rehabilitation Medicine, claiming the patients must not have done the NICE version of GET although as Ellen Goudsmit has pointed out, there are two different versions of GET in NICE!)]