• Phoenix Rising needs funds to operate: please consider donating to support PR

Rep. Raskin introduces ME/CFS legislation sponsored by Solve M.E.

Emily Taylor

Senior Member
Messages
148
Likes
554
Location
Los Angeles, CA
Rep. Raskin (MD-08) Introduces First Ever Legislation for ME/CFS Research Funding!
Solve M.E. is proud to endorse H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act, to authorize a $60m program expansion for ME/CFS research at the National Institutes of Health (NIH) and expand public and medical education ME/CFS initiatives


Representative Jamie Raskin (MD-08) meeting with ME/CFS Advocates as part of Solve M.E. Advocacy Day 2018

This week, longtime ME/CFS champion Representative Jaime Raskin of Maryland’s 8th Congressional district introduced landmark legislation for ME/CFS research. H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act, authorizes $60 million over the next four years to expand NIH research into post-viral ME/CFS and also empowers the Department of Health and Human Services (HHS) to provide for public awareness and education campaigns to increase understanding of ME/CFS, with an emphasis on early diagnosis. Additionally, the legislation includes mandatory reports to Congress on the progress of implementing the expanded research program.

“We cannot let the number of ME/CFS cases rise due to a lack of research and understanding. As we battle the coronavirus, this critical legislation will help us respond to this ME/CFS hidden health crisis.”said Rep. Raskin.“While we are facing a monumentally dangerous public health crisis, we must take all necessary steps not only to stem the spread of COVID-19, but also to prevent and control its lasting repercussions.”

Read more about Representative Raskin’s Legislation




Senator Ed Markey (MA) meeting with Solve M.E. and Massachussetts ME/CFS & FM Association in 2017

This legislation follows last month’s Senate Leadership letter by Senator Ed Markey of Massachusetts with a matching proposal calling on Senate Leadership to prioritize medical research funding ME/CFS in any upcoming coronavirus relief package.

“Congress must take the necessary steps to maximize the ability to properly diagnose and treat post-COVID-19 patients with ME/CFS-like symptoms and ensure these patients are not left behind,” write the Senators in their letter to Senate Majority Leader Mitch McConell and Senate Minority Leader Charles Schumer. “Strengthening the existing research infrastructure for ME/CFS will equip our nation with the resources necessary to improve the overall health of our nation moving forward.”

Read more about Senator Markey’s letter




Thanks to your hard work in our largest ME/CFS Advocacy Day ever, Solve M.E. worked closely with both Senator Markey and Representative Raskin to draft vital NIH programming priorities to meet needs of the ME/CFS field including:
  • New ME/CFS disease-specific funding announcements to deliver needed diagnostics and treatments faster
  • An initiative to reach consensus on the ME/CFS case definition
  • Mechanisms to incentivize new and early career researchers to enter the field
  • Data Collection including epidemiological information, natural history, risk factors, comorbid conditions, and the availability of medical services for individuals with ME/CFS and their families
  • Establishing new and expanding existing Collaborative Research Centers
  • Developing a research agenda in collaboration with interagency partners, stakeholders and disease experts
  • Expanding public and medical education initiatives focusing on early diagnosis and appropriate treatment recommendations
Stay tuned for more updates on this historic effort and ways you can take action! Feel free to thank Senator Markey (@SenMarkey) or Representative Raskin (@RepRaskin) on social media.
 

Emily Taylor

Senior Member
Messages
148
Likes
554
Location
Los Angeles, CA



Tell Your Representative "SUPPORT INCREASED FUNDING FOR POST-VIRAL-DISEASE RESEARCH INTO ME/CFS!"
Thanks to your hard work during ME/CFS Advocacy Week, Representative Jaime Raskin (MD-08) introduced H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act.
Ask your Representative to co-sponsor H.R. 7057 today!

Last month, longtime ME/CFS champion Representative Jaime Raskin of Maryland’s 8th Congressional district introduced landmark legislation for ME/CFS research. H.R. 7057, The Understanding COVID-19 Subsets and ME/CFS Act.

When passed, this legislation will bolster ME/CFS research at the National Institutes of Health (NIH) by including an additional $60 million for expanded research opportunities looking at connections between ME/CFS and COVID-19 survivors. It will also enable existing public education programs to include ME/CFS and post-viral disease information, with a focus on early diagnosis.


“We cannot let the number of ME/CFS cases rise due to a lack of research and understanding. As we battle the coronavirus, this critical legislation will help us respond to this ME/CFS hidden health crisis. While we are facing a monumentally dangerous public health crisis, we must take all necessary steps not only to stem the spread of COVID-19, but also to prevent and control its lasting repercussions.”

— Representative Jaime Raskin (MD-08)


Read more about Representative Raskin’s Legislation

Please contact your Representative TODAY and ask them to ask them to sign-on to this effort.


 
Messages
58
Likes
130
Guys, I really hope this gets a lot of support from the community. It's super important to show that we support this so that legislators know they can't ignore us, and this is also very important as a stepping stone for even more funding.

I asked OMF and MEAction why they're not supporting this more. I also contacted different local ME/CFS organizations to see if they could tell their members to support HR 7057:
 
Messages
682
Likes
1,448
Location
India
How many votes are needed to get it passed ? I dont know much about US legislature. So is it required to clear both houses by an absolute majority or is a simple majority sufficient ?