@Wishful @Pearshaped
All good points. I don't usually read the posts on remission- perhaps i'm too envious like watching others get out of prison can't be much fun. But will start looking at them i think - could well be that when people talk of remission, its merely a state switch to another set of symptoms they find less devestating.
i wonder also about adreneniline and related catecholamines. i actually had a "state switch" literally mid stride recently. was the strangest thing. First a couple months back aI sad a switch that after decades allowed me to walk more than 1/2 a block. so was thorougly using and enjoying that (inidentally, i could see soemone falsely calling that a "remission") and was even walking to a nearby grocery store and a park. was amazing (I used to hike regularly and loss of walking was a big one). Was on my way home and sudenlty...sudeenly... it really and truly was like someone pulled the plug out of the wall. mid stride. my walking slowed to a snail pace (one of the things that had happened when i was able to walk again was a restoration of abilityto walk FAST something i lost too for years and years). The contrast was so striking. try as i might, could not walk faster. Plus suddenly had pains all over - was just incredible.
so i was thining i was really having wild swings in norepineprhine levels. the pains and slow walking were when the excess nor epi finally all disappated.
(I did go back to my newfound walking ability, but there's an odd irony- i injured my knee and can't walk. hard just getting around house. don't know what's wrong with it and since i cannot do surgery or even tolerate a brace, and in the past have gotten injured from PT i may have to live with it. So more to mourn. knew the walking ability wouldn't laste forever, though didn't thijnk would end like this)
Anyway, sorry for long message. i really like the state swtich stuff. people with trheeumatological autoimmune illnesses also report this, though only 1 in 10 docs acknowldeges it.