Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Usually, that means a folate trap i.e. B12 deficiency. But if your serum B12 is also high, then the following article might be of interest.
I don't get fevers and swollen lymph nodes in my neck . I had sarcoidosis in the lympnodes lungs but those went away the granulomas did after prednisone treatment last year.
Those are pretty close to describing my symptom's. How do you know for sure ?
Well, medscape is a pretty mainstream, authoritative source of health info. Maybe you could print it out and take it to your doctor.
Is it a high enough dosage though? I bought some anyways maybe I'll get lucky highly doubt it though
It has 12.5 mg in the ortho multi men I take. I'll read up more on it. Yeah doesn't sound like my problem is from them. I see my integrative doctor Friday so I'll give a updated answer as he will be looking at what you were saying. I still think you are on to something.
Noticed more sustained energy as a effect from thiamine. I wonder if maybe that's why I feel the same? Could be the veggies but I have long sustained energy. Today I was working as fast as I could for 5 hours straight. Doesn't feel bad but doesn't feel good. I consider it a win. Although I unfortunately started smoking cigs again. I went two months and will try again. It's just really hard to say no too at work.
Multivitamins have minimal amounts of most nutrients in ratios that may or may not be right for the patient taking them. It is an erroneous assumption to think that they would be sufficient for any sick patient, especially someone ill with ME/CFS.
That's a pretty low dose. I'm taking 750 mg of Benfotiamine or else I test low in thiamine.
This describes what thiamine does, including reducing fatigue:
Exactly how did you do that and for how long? Reducing them in your diet is one thing, but that just stops them from adding to the deposits you already have. Typically, if you have an oxalate problem You will have oxalates deposited in places throughout your body, including your eyes, heart, kidneys, joints, mitochondria, and everywhere else. It typically takes a long-term effort, including taking potassium, magnesium, or calcium citrate prior to each meal, a good deal of vitamin B6 in the form of P5P, and a low oxalate diet, for 1 to 7 years. The idea is to reduce them being deposited, and then to lower the gradient so that they start to come out of where they are stored. Oxalates can cause all kinds of mischief while you have them. They are a toxin, but they do not use the normal detox pathways, this is how you have to detoxify from them.
This is more than unfortunate. It is directly damaging to your body, and put stress on your ability to detoxify, which sounds like it is already stressed. This would greatly increase your need for detoxifying nutrients.
