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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Senior Member
New Jersey, US
I'm seeing a new doctor on Wednesday, and I'm trying to prepare for anything he can throw at me (lmao). My [suspected and most likely] ME started with mono, probably EBV, and I'm curious:

What are the differences between recurrent/reactivated/chronic epstein-barr and ME?
Specifcally the symptoms and behaviors/how they present?

I guess this also floods into the differences between post-viral fatigue syndrome, Chronic EBV, and ME/CFS (are they incorrectly used interchangeably, is there actually a difference, medically?)

Thank you medically & scientifically educated people, in advance 🙏