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Rare Sharing of Data Leads to Progress on Alzheimers


XMRV+ Member
Ontario, Canada
Here's the link to an August 12th NY Times article:


Describes a model way of scientific collaboration that seems to be everything PWME could wish for.

Its not science the way most of us have practiced it in our careers. But we all realized that we would never get biomarkers unless all of us parked our egos and intellectual-property noses outside the door and agreed that all of our data would be public immediately.

The good news is that it was the FDA and NIH who were key players in making this work.

"The idea for the collaboration...emerged about 10 years ago during a casual conversation in a car."

Please be a ME/CFS car out there somewhere.


I thought this article offered hope for us too Rafael. I believe Cort and the Patient Advocate both saw the similarities & potential and wrote on this (but neither article is showing right now - hopefully tomorrow).