VeganMonkey
Senior Member
- Messages
- 130
- Location
- Australia
Interesting survey
Really important survey for us - to get our conditions 'on the map'. It's by WA government but is for all Australians (don't think you have to be Australian to fill this in). About 40 questions on topics like delays in diagnosis, misdiagnosis, adequacy of research, availability of targeted treatments etc
Theoretically EDS/POTS/FM/ME/CFS are not rare (in occurrence - just under diagnosed as it is so hard to get a diagnosis), but they are classified as rare, and they are the type of condition they are targeting.
There is plenty of room for comments throughout but none at the very end so have your say early on - otherwise it is very good, anonymous and non-intrusive.
https://www.surveymonkey.com/s/AustralianRDsurvey
Really important survey for us - to get our conditions 'on the map'. It's by WA government but is for all Australians (don't think you have to be Australian to fill this in). About 40 questions on topics like delays in diagnosis, misdiagnosis, adequacy of research, availability of targeted treatments etc
Theoretically EDS/POTS/FM/ME/CFS are not rare (in occurrence - just under diagnosed as it is so hard to get a diagnosis), but they are classified as rare, and they are the type of condition they are targeting.
There is plenty of room for comments throughout but none at the very end so have your say early on - otherwise it is very good, anonymous and non-intrusive.
https://www.surveymonkey.com/s/AustralianRDsurvey