T
Terri
Guest
Where can I find this? I tried to follow a link on Rich's article on the Phoenix Rising website but the link would not work.
Thanks!
Terri
Thanks!
Terri
Hi Terri,
Rich recently posted this on the B12 Thread.
Current version of the Simplified Protocol
Hope that helps,
Kim
Hi, Terri.
I appreciate your interest in the Simplified Treatment Approach, and thanks to Kim for steering you to my recent post about it.
If you want more information about the theoretical basis for this treatment approach and the experiences of others who have tried it, my papers and articles can be found in the files section of the Yahoo cfs_yasko group's website. Several of them are also posted on Cort's phoenix-cfs site.
The most recent of the papers is about a treatment study that was carried out on 30 women in Dr. Neil Nathan's medical practice. It worked out pretty well. We reported it at the most recent IACFS/ME conference in Reno last March.
Best regards,
Rich
Rich, (or others)
Quick question - why actifolate & Folapro? Don't they both contain L-5-methyl tetrahydrofolate?
Hi Rich,
I just had another look at your study. The increases in GSH are impressive.
I have been wondering if this treatment would have impact onother antioxidants. It seems someof them are quite specific, for example, coQ10 is fat soluble and important in the mitochondria. Do you feel it's equally important to test and treat that oen , for example.
Also, SOD depends on zinc,copper,manganese so would it be just as important to test its function ?
Suzy
If I were totally starting over at this point, I would probably use a pure folinic acid supplement in place of Actifolate, to eliminate the folic acid, which some people have difficulty chemically reducing to the active folates. Then the protocol would contain only 5-methyl THF and folinic in terms of folate forms. I think this would still perform as well as the original protocol, and maybe better, but it would be a bigger departure from the protocol we tested, so it was a compromise./QUOTE]
Hi Rich,
What is an example of this pure folinic acid supplement that you might use now instead of Actifolate.
Thanks very much
If I were totally starting over at this point, I would probably use a pure folinic acid supplement in place of Actifolate, to eliminate the folic acid, which some people have difficulty chemically reducing to the active folates. Then the protocol would contain only 5-methyl THF and folinic in terms of folate forms. I think this would still perform as well as the original protocol, and maybe better, but it would be a bigger departure from the protocol we tested, so it was a compromise./QUOTE]
Hi Rich,
What is an example of this pure folinic acid supplement that you might use now instead of Actifolate.
Thanks very much
Hi, Marylib.
There are several brands on the market, and I don't know whether one is better than another. I think they are all in the form of calcium folinate. Source Naturals supplies one. Health Products has one. Klaire Labs has one. Some are in capsules, and some come as tablets. Whichever would be easiest to divide up would be the best, because they come in the 800 microgram size, and I think most PWCs need to start with quite a bit less.
I see that Amy Yasko sells a capsule form at www dot holisticheal dot com. I don't know which brand it is, and you might be able to find a lower price on the internet, including shipping charge.
Rich
Hi, Marylib.
There are several brands on the market, and I don't know whether one is better than another. I think they are all in the form of calcium folinate. Source Naturals supplies one. Health Products has one. Klaire Labs has one. Some are in capsules, and some come as tablets. Whichever would be easiest to divide up would be the best, because they come in the 800 microgram size, and I think most PWCs need to start with quite a bit less.
I see that Amy Yasko sells a capsule form at www dot holisticheal dot com. I don't know which brand it is, and you might be able to find a lower price on the internet, including shipping charge.
Rich
Thanks Rich.
Hello. I am new here and don't really know much about many of the discussion topics! I just discovered this board and it's fantastic. Anyway I do try to keep up in some way with treatments/advice etc but it's hard to take it all in. I am on Dr Myhill's protocol and have been on it for about 4 months now, with quite dramatic good effects! But now I worry that I might be treating the symptoms but not the cause, with Q10 supplementation etc (my levels tested VERY low and that supplement has definitely helped a lot) - I take L-Glutathione. Is this good or bad? Is there anything else I should be doing? Myhill has not talked about the methylation cycle to me yet but I have seen her handout about it. I think she only tries that stuff in her patients who are not getting better...? That is what it seemed like to me. I just started thyroxine too and that seems to be helping. I have been ill for 2 years (although I was first diagnosed with a mild case after viral infection almost 10 years ago - it almost completely went away so I thought I was fine until I became severely ill 2 years ago). I was getting worse and worse until I got Myhill as a doctor - was almost bedbound. Now I have a wheelchair, I hardly get chest pain or headaches anymore, I can read again in small amounts and watch TV... my life has changed and it's only been 2 or 3 months since I started daily B12 and magnesium injections. Anyway I just wonder whether Rich thinks this protocol is OK. Thanks in advance for any help!!Mia
Hi Rich - thanks for your response. That is very helpful. I am definitely doing much better on the Q10 + glutathione etc and I just started thyroxine and think it's helping even more. My life really has totally changed in 4 months. I do try to understand everything I am taking but I confess not to understanding much about the methylation cycle! Is it that I should be taking extra stuff? Is there something quite simple I can take in addition or is it a whole different protocol? I have a phone appointment with Dr Myhill in a few days' time and I could ask her for some extra medications/supplements. I know I am probably being dense - brain fog! What things should I be taking in addition?
Anyway thanks so much for your help. Your research is very interesting! I am doing so well with every new thing I add (I built up the supplements + elements of the protocol so slowly) that I am now eager to add more things!
Take care.