There was a number of people on valcyte and valtrex at the same time. The theory was valcyte didnt hit ebv as well as valtrex, so valtrex was for ebv and valcyte for cmv/hhv6. I think a few people herxed badly using both, so some people did the valtrex to knock ebv down and after several months would add valcyte to it or just drop valtrex and take valcyte. Many different variables people took.
I was an ebv/cmv type. Looking back i was on famvir and valcyte for a period, im not sure i really needed the valcyte for as long. Should have atleast stopped valcyte after 6 months and continued with famvir. I think the valcyte lowered my white cell count/neutrophils too low and still on the low side. There was a number of us on famvir for cmv and hhv6 that improved on it but not valtrex. So its possible famvir may have a slightly broader range of effects than valtrex.
Im still on famvir and holding quite well on it. Ive tried stopping a few times but get viral symptoms and or shingles outbreaks. So i stay on famvir now. I think the reactivations are due to the low nk function which is hard to improve permanently and low neutrophils. Off and on antibiotics for chronic sinusitis, again low neutrophils dont help.
Im not sure anyone gets back to 100% but im doing well and able to exercise hard, work etc. I have had periods of fatigue that can last a month or 2, usually sinusitis kicks in. Frustrating but its then time to cut out exercise and try to chillax and roll with the shit until passes. Usually when i might add immunovir or cycloferon to increase nk function to help get me out of the hole, a few b12 shots and extra sleep and surf the lounge alot. My strength in the gym has gotten back to pre cfs levels, stamina no. Makes me think that any mito dysfunction in cfs is mainly aerobic metabolism as anaerobic fitness is what helped me to regain lost strength. I was 31yo with cfs onset and now, struth 49, 18yrs of cfs. Time flies when you dont do alot 🤣🤣😂. Lots of trial and error and constantly adjusting/adapting to how your body is reacting.
Cheers