I'm just starting Miyarisan for IBS issues, google brought me here while looking for reviews. I do not share a diagnosis of CFS or ME, in fact, I feel both embarrassed and lucky to say I don't even know what it is. But I do have horrible gut troubles that have near crippled me.
Now I'll move on to the reason for my post. If I understand correctly, there is some speculation as to the role of gut bacteria in your disease - both from the dysbiotic events of life (antibiotics, diet, genetics, etc.) and probiotics themselves (whether lactate/byproducts worsen your symptoms). Then I had a thought: have you considered Fecal Microbiota Transfer? More specifically, the donation of feces from a healthy human body into your own? This is FAR superior to probiotics or resistant starch. It has an excellent success record. I think I chanced across a thread on this forum which briefly brought it up, but I don't think it was given enough credit. This method could serve as the "end-all-be-all" as to whether probiotics or colonic bacteria are a factor in each of your individual illnesses.
Perhaps in the cases where it does not work, the therapy was only done a few times before discontinuing, so improvement was only temporary? And when it does work, the results are famous for being extraordinary and lief changing. Doing it for free at home is completely reasonable, and probably preferable to going to a clinic... that is to say, you can continue the therapy for months if need be in order for the full curative effect to take place, as many testimonials insist. If your life is really hosed up healthwise, this should definitely be on your radar. Here's the most accessible resource I've found:
www.thepowerofpoop.com