Pulling weird “threads” out of skin???

[Hoosierfans]

A close friend of mine has developed CFS symptoms along with an odd skin condition — she’s itchy all over and pulling what look like little “threads” out from under her skin. Some are contained in what looks like cystic acne / boils, some are just protruding out from her skin.

anyone heard of such a condition?? She’s terrified od going to a doctor an being labeled with a psychiatric condition, so she hasn’t sought help yet. I’ve encouraged her to see a couple of specialists (including a dermatologist), but also thought I would ask here in case anyone has experience with it.

My initial thought was some kind of parasite….

 

[dave11]

This thread may perhaps be of interest:
https://forums.phoenixrising.me/threads/morgellons.85042/#post-2358461

 

[YippeeKi YOW !!]

Morgellon's is one of the newest and most baffling medical mysteries.

Google 'Joni Mitchell, Morgellon's', and you'll get an idea of how anyone presenting to a Dr, of ANY discipline, complaining of this condition is going to be dealt with.

If someone of Mitchell's international fame, luminous talent, brilliance and evident intelligence can be dismissed and treated this way, what hope do the rest of us mortals have?

She’s terrified od going to a doctor an being labeled with a psychiatric condition, so she hasn’t sought help yet.

Sadly, I agree with your friend. The dangers far outweigh any potential possibility for help, and for now, her best option is to industriously research, and, like us, use herself as her own lab rat and Petrie dish ....

EDITED .... Couple of typos, couple of words ....

 

[Woof!]

Does she have access to a microscope? If so, she should view these threads, with and without a drop of mineral oil, under the scope at 10X and 100X. Depending on what she sees, she can research various parasites (such as hookworms or ascarids) before sharing her findings with a competent and compassionate dermatologist or family practitioner. If the threads appear parasitic, don't throw out the slides! Tell her to bring them with her to the MDs office.

 

[YippeeKi YOW !!]

If the threads appear parasitic, don't throw out the slides! Tell her to bring them with her to the MDs office.

As well as I can recall, and we wont go into exactly how well that might be, the Drs in Joni Mitchell's case did all that and more, and still assigned her to the "Hey, LOVE your albums, babe, but you're nut .... uhhhhh.... it's all in your hea ... uhhhh, idiopathic illness of unknown etiology ....." file ...

I followed it fairly closely because I'm a big Mitchell fan. Brilliant musician, writer, singer, and painter .... I guess the Fates or the Muses decided that it was time for some sort of give-back ....

That being said, I think your advice is excellent, and in the ensuing several years, more and more incidences of Morgellon's have popped up, so maybe the famously reticent medical community is ready to adapt to it ....

 

[Reading_Steiner]

probably morgellons, I looked into it briefly recently and I thought that perhaps it could be a natural disease where chemical chains are forming somehow like hair growth, but everyone I see talking about it says its not a natural disease, they associate it with chemtrails, nanotechnology or the paranormal, black project stuff, hence its supposedly a controversial topic. Not enough information to make a decision yet either way.

 

[YippeeKi YOW !!]

Not enough information to make a decision yet either way.

I agree. It's really mysterious and .... spooky ...

But I remember how many people, not just Drs but pretty much everyone, scoffed at the outbreak in Tahoe all those years ago, and subsequent early surfacings of what later, muuuuuch later, became accepted as CFS and/or FM, so I await more input, like you.

And given the rumors around Chinese labs, odder things have happened than some Mad Scientist experiment escaping the lab and mystifying everyone as to its genesis ...

 

[nerd]

I wonder if this could be some hairs growing into the skin due to an autoimmune reaction. I have plenty of singular white hairs (not gray hairs). I think I also remember a case where someone had an autoimmune reaction against his own hair, losing all his hair after a vaccination. Just a guess. It's just another case where serious research is prevented by stigmatization.

 

[lenora]

A biopsy may show exactly what's inside the cyst (acne) whatever. A parasite may show up, or at least your friend will rest assured that it's not life-threatening. Yours Lenora.

 

[Judee]

It's just another case where serious research is prevented by stigmatization.

I wonder if the fibers are something the parasites are sloughing off like maybe some kind of exosome.*

It just seems odd to me...all these cases have those fibers in common. If they could figure out what those are...but like @nerd said, unfortunately they wont.

*This website gives a description that I'm trying to understand of what exosomes are: https://bmcbiol.biomedcentral.com/articles/10.1186/s12915-016-0268-z

 

[5vforest]

Morgellons is terrifying, and not only for the fact that you won't be believed by 99.9% of doctors. Probably even worse than ME/CFS that way.

https://gingersavely.com/ has published on the issue and I would try contacting her if I was in this situation.

Of course she is going to draw controversy, but if you suspect Morgellons you basically don't have many other options.

 

[Viala]

Morgellons is terrifying, and not only for the fact that you won't be believed by 99.9% of doctors. Probably even worse than ME/CFS that way.

Which is really strange considering they have a visual, physical proof. The fact that they are being send to psychiatrists instead tells it all, it is not by accident and I'm afraid it may be similar with CFS and other less known diseases.

 

[YippeeKi YOW !!]

Morgellons is terrifying, and not only for the fact that you won't be believed by 99.9% of doctors.

I think that's being really generous. Im betting you could up that to 100%.....

Probably even worse than ME/CFS that way.

It's hard to believe that there's something worse, but I agree with you ....

Of course she is going to draw controversy, but if you suspect Morgellons you basically don't have many other options.

Very thoughtful of you to post that link. Controversial or not, any help right now would probably be really good ... at least it's a starting point, and there aren't many, or probably any, others, at least not any easily available ....