I need help at this point. My symptoms have been stacking since I've joined this site in July-August. I had a severe cold in July and after it went away, my symptoms have stacked to unbearable levels.
I've been formally diagnosed with small fiber neuropathy and sudomotor dysfunction. Believed to be mediated by my cold somehow.
My ANA is 1:160 nucleolar and homogeneous pattern.
Retested and down to 1:40 around 2 months ago.
Higher anti cardiolipins and IgD.
However, I dont know if small fibers are the whole picture and we dont have a clear picture on the autoimmune stuff. Nonetheless, I'm going for IVIG next week:
1) I've been getting a few issues with my swallowing area tightening and breathing. My breath would feel like I'm over breathing and swallowing air for no reason.
2) My hands and feet are getting progressively red and cold. This is near constantly cold. Recently it's been feeling numb/stinging and a bit itchy. Wondering if this is Raynauld's and if this is something IVIG can fix as I'm going for treatment next week?
3) My rectum is always open. It has not stopped and sitting down and laying down is an issue. It is something I feel 24/7 forover 3 months now and is killing my quality of life. I do have some linger gi issues like faster digestion urge to go after I eat, and watery trail on tissues. However, stool is generally solid but has a trail. Been told by @Learner1 some great tests for gi issues but doctors wouldn't give those to me. Also having bladder issues now where I leak urine after I void.
I have other issues but I'd rather not bog this down. If anybody has suggestions, can maybe think of a cause please by all means let me know.
I'm going for IVIG next week and hoping this will go away eventually or improve..
I've been formally diagnosed with small fiber neuropathy and sudomotor dysfunction. Believed to be mediated by my cold somehow.
My ANA is 1:160 nucleolar and homogeneous pattern.
Retested and down to 1:40 around 2 months ago.
Higher anti cardiolipins and IgD.
However, I dont know if small fibers are the whole picture and we dont have a clear picture on the autoimmune stuff. Nonetheless, I'm going for IVIG next week:
1) I've been getting a few issues with my swallowing area tightening and breathing. My breath would feel like I'm over breathing and swallowing air for no reason.
2) My hands and feet are getting progressively red and cold. This is near constantly cold. Recently it's been feeling numb/stinging and a bit itchy. Wondering if this is Raynauld's and if this is something IVIG can fix as I'm going for treatment next week?
3) My rectum is always open. It has not stopped and sitting down and laying down is an issue. It is something I feel 24/7 forover 3 months now and is killing my quality of life. I do have some linger gi issues like faster digestion urge to go after I eat, and watery trail on tissues. However, stool is generally solid but has a trail. Been told by @Learner1 some great tests for gi issues but doctors wouldn't give those to me. Also having bladder issues now where I leak urine after I void.
I have other issues but I'd rather not bog this down. If anybody has suggestions, can maybe think of a cause please by all means let me know.
I'm going for IVIG next week and hoping this will go away eventually or improve..