I watched the 30 minute version of 'Voices from the shadows' again yesterday and sent the link to a number of people I emailed about the NICE guidelines petition.
"Severe and lasting relapse occurs when patients are given inappropriate psychological or behavioural management: management that ignores the reality of this physical illness and the severe relapse or exacerbation of symptoms that can be caused by increased physical or mental activity, over exposure to stimuli and by further infections. (
See Bristol Watershed event videos)
A belief in behavioural and psychological causes, particularly when ME becomes very severe and chronic, following mismanagement, is still taught to medical students and healthcare professionals in the UK. As a consequence, situations very similar to those shown in the film are taking place right now, both in the UK and in other countries."
"
‘Trial By Error’ – by David Tuller.
‘Voices from the Shadows’ shows the
devastating effects some patients have suffered following exercise programmes. These treatments of Graded Exercise Therapy and Cognitive Behavioural Therapy, used as the primary treatment for CFS and ME on the basis that patients have become de-conditioned from resting too much, caught in a cycle of boom and bust as […]
"
The ending comment by Dr Speight sums up that if the disease hadn't been hijacked by the psychs 30 years ago we would probably know the cause by now.
I really think this should be shared more.
http://voicesfromtheshadowsfilm.co.uk/
eta: this is no longer available on DVD.
eta 2: the link to the Bristol Watershed is also well worth a look.