JohnM
Senior Member
- Messages
- 117
- Location
- West Yorkshire
Print is too small for my tired old eyes to read. Does anyone have a transcript. Last time MEA put one up on their website. Maybe they will again. Is it any good?
@trishrhymes
Article transcribed and attached .. I think it is accurate, and hope helps some for those tired old eyes of yours
I wonder who that doctor was?
The one who trawls the internet looking to rebut any criticism of The BPS model with the same standard answers that dont address any of The issues ? It did read awfully familiar.
As posted on Private Eye Columnists page .. with M.D
"All interventions – drug or non-drug – can cause harm as well as benefit, and there are a significant number of patients with severe CFS/ME who are not helped by any current interventions. Research needs to focus on those most severely affected, and we all need to focus on believing in ME. It is a proven and classified neuro-immune disorder, from which some people recover and some don’t. Yet...” (the bolding is my emphasis)
I think the BPS adherents have developed a central repository (I leave you to decide whereabouts this is located) for the provision of such non-responses, as evidenced yet again in this article - the Yet... that is the BPS modus operandi.
So love the ambiguity in the ".. the need to focus on believing in ME", not!
Thought I might highlight a few more excerpts which may be of interest .. (again with my own bolding)
That cognitive behavioural therapy (CBT) is the only treatment which has repeatedly been shown to have any benefit is conveniently ignored.
ME campaigners don't ignore the fact the CBT and graded exercise therapy (GET) have been shown to work in randomised controlled trials and are endorsed by lofty scientific institutions such as the Cochrane Collaboration and NICE; but they do challenge the science.
Remind me again which other 'treatments' are offered on the NHS .. thought so! The use of the phrase 'any benefit' in this context is as meaningless as saying "kills up to 99% of germs" and the like so beloved of advertisers, and perhaps I still misunderstand the concept of a RCT?
For the PACE researchers to accept any such re-analysis would require it to be published in a credible peer reviewed journal with independent analysis that is free from bias. It is a long and complex process.
Insert your own expletives here ..
M.D. agrees that the split between mind and body is unhelpful, and there are indeed physical, psychological and social elements in all illnesses, either as causes or consequences.
..
Some patients have CFS/ME, some have chronic fatigue likely to be due to other causes, and many have a mixture of both.
..
Sometimes it isn't easy to figure out precise causes for the fatigue, even in 90 minutes.
How to muddy the waters, and how wonderful that we can all now get a 'triple diagnosis' in 90 minutes for whatever ails us
Most young patients who are able to engage in treatment recover in time.
Insert your own expletives here ..
The rest of the article is pretty much an implicit advertisement for the need to undertake the FITNET-NHS and MEGA studies; of the latter, it seems all those supposed 'omics studies to be undertaken at some unspecified time in the distant future, are reduced to a study of genetics (perhaps article word limits were a constraining factor here) and "drug and nutritional treatments" whatever they may be, or "trying and trialling the non-drug treatments we already have."
To keep with the marketing analogy above .. "Do you want your old life back? Try our new and improved online CBT and GET courses, relearn how you can eat well, sleep better, and exercise more in 8 weeks or less, no drugs needed!"
Research data must be shared for others to fairly analyse and use.
Fairness and use to be judged by whom exactly?
But ultimately, individual patients decide what works for them, and what dosen't.
For some "Yes", and I made my choice sometime back .. no prizes for guessing which
For some "No" ... the latter especially if you are a child who does not respond positively to non-drug treatments it seems, and all because you have naughty parents who reinforce your false-illness beliefs.
Apologies yet again with the long post, and thanks again for your company here on PR ... helps more than I can say.