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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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POTS in Covid Long-Haulers


Senior Member
I have been pretty well distracted by the exigencies of my life of late, so may well be behind the news cycle on this. If so....apologies for redundancy. However, I was--can I say excited or is that reprehensible?--to see that POTS is being discussed as a long-term consequence of infection with Covid-19.


Many of us have experienced an uptick in hope that somehow our mostly invisible suffering will be seen, now that people with a 'legitimate' illness etiology are being diagnosed with ME/CFS or post-viral illness of an indeterminate sort. Similarly, if POTS is a diagnosis now being given to long-haulers, that means that perhaps those of us with POTS can hope for more research money, treatment and diagnostic emphasis, physician awareness and education, and possibly even improved outcomes--better lives--- beyond those we currently have available to us.