Post viral fatigue

[Tammykinz]

Curious how many people on this forum are in the early stages called post viral fatigue. Under 6 months or even under a year ?

I am 4 months and few days in. Curious how your progression has been this past year, how it started. How functional you are and what treatments you have tried? Any improvements? What works and what makes you worse?

I crashed Jan 27th 3 weeks after i had a 2 week cold. I was running my body on empty, dieting, falling short on nutrients and ignoring rest that i should of taken. Chronic back pain which i ignored. I been bedridden first 3 months.

This past 1 month ive graduated to a recliner chair in my living room. I do not sit with it reclined most of the time. I stay up in it from about noon until bedtime. I sleep poorly at night.

The bedridden part was very hard as i had ortho intolerance. I did not have a drop in BP but i had an increase in heart rate heart pounding and activity intolerance. Felt sick and like passing out if i didnt go back to laying down. Managed through quick showers sitting on a stool.

Every day i tried walking down my hallway just gently and slowly increased it but i would get into crashes and then would have to start all over. Hardest was going to doctors or lab because was so hard to be up i felt like passing out.

Now i struggle badly with recurring flu like symptoms. My body just feels sick, i feel toxic. Feel like i have fever but dont. I get irritated sinus throat and chest but no congestion or true cold or infection. I sneeze sometimes as well. This flu like thing comes in waves...it stays for few days then retreats for few days maybe a week until it picks up strength again. It wipes me right out. I hope this cycle will stop i cant stand it. Always comes on in afternoon. I always wake in morning feeling ok.

I havent done any treatments.

Curious how it is for you guys and whats helping you ?

 

[Tammykinz]

I also want to say. Im cognitively well. My mind is sharp. My attention span is normal for me. Im not sleepy per say but am energyless!.

Im depressed badly because of this. Even have had suicidal thoughts because i cant see myself living this way. Not going to do it but i dont know how much more i can handle. I get anxiety as well and panic attacks.

 

[alkt]

Curious how many people on this forum are in the early stages called post viral fatigue. Under 6 months or even under a year ?

I am 4 months and few days in. Curious how your progression has been this past year, how it started. How functional you are and what treatments you have tried? Any improvements? What works and what makes you worse?

I crashed Jan 27th 3 weeks after i had a 2 week cold. I was running my body on empty, dieting, falling short on nutrients and ignoring rest that i should of taken. Chronic back pain which i ignored. I been bedridden first 3 months.

This past 1 month ive graduated to a recliner chair in my living room. I do not sit with it reclined most of the time. I stay up in it from about noon until bedtime. I sleep poorly at night.

The bedridden part was very hard as i had ortho intolerance. I did not have a drop in BP but i had an increase in heart rate heart pounding and activity intolerance. Felt sick and like passing out if i didnt go back to laying down. Managed through quick showers sitting on a stool.

Every day i tried walking down my hallway just gently and slowly increased it but i would get into crashes and then would have to start all over. Hardest was going to doctors or lab because was so hard to be up i felt like passing out.

Now i struggle badly with recurring flu like symptoms. My body just feels sick, i feel toxic. Feel like i have fever but dont. I get irritated sinus throat and chest but no congestion or true cold or infection. I sneeze sometimes as well. This flu like thing comes in waves...it stays for few days then retreats for few days maybe a week until it picks up strength again. It wipes me right out. I hope this cycle will stop i cant stand it. Always comes on in afternoon. I always wake in morning feeling ok.

I havent done any treatments.

Curious how it is for you guys and whats helping you ?

sounds like your continuously overdoing it bringing on classic post exertional malaise I can get this from just reading to much .it is a horrible symptom of m e the only way of reducing it in my experience is by resting and pacing yourself far more difficult than it sounds especially when your energy levels are so low.

 

[Tammykinz]

Yeah i thought of that. I do soooo little. I dont know how to do less. I lay in bed from about 930 pm until 11am next day. Have a seated shower. Rest until noon in my bed. Then i get up make toast sit in chair all day until bedtime. In chair i fiddle on my phone alot playing games social media and i watch tv. I get uo and walk my hallway a couple times a day for only few minutes. I get up to make like a sandwich grab a snack and go to bathroom.

I dont know how to do any less short of people caring for me.

When i stayed in bed for 3 months my OI started and was getting worse. I was also muscle wasting and getting very weak. I am glad i can now sit in a chair.

Ugh i dont know....

 

[alkt]

social media just like any form of communication can eat up a lot of energy perhaps for a short time you could try limiting the amount of time spent. I know this is hard from my own experience this disease is so isolating and being alone with out distractions makes thing even harder to bear .

 

[notmyself]

well,i start to feel better/ recover after 18 months...have patience , listen to your body, eat well, sleep, dont exort yourself and you will get better

 

[Tammykinz]

I started crashing again today sittingbin my recliner. I ate a bag of m&ms which i shouldnr have done. Then started feeling sick. So went to lay down in bed and the bedrest mafe me feel better. Not fully but def better than sitting in chair.

Thing i hate about bedresting is that my heart gets used to being so calm that when i go to get up it starts pounding. If i can kerp getting up and sitting my heart is kinder to me when i do need to move around.