No not superficial; it feels like its deep inside my legs, in my blood stream or so.
I have the muscle twitching too, and crawling sensations too, and i also have the tendency to get numb limbs, but this is different
Oh and I get it more if I use PRX an antiviral enzyme. I have the idea that it is related to some infection, but it could also be something else.
I have heavy limb feeling when I am flaring but I would really add magnesium to your diet. I used to have restless leg and cramps but as long as I take magnesium I am fine. It is a common problem with CFS/ME.
Hey! Just want to say these sensations were the first ones to SCARE the HELL OUT OF ME and began my journey with ME/CFS around 1999. Looking back I had experienced odd sensations even as a child; painful pins and needles from feet to scalp; IBS- intolerance to milk products; easily exhausted by mental/physical exertion, insomnia/hypersomnia/delayed sleep phase, horrible bloating, multiple and long-lasting skin rashes and infections....but as a child/adolescent I really thought these were NORMAL...and I was pretty invested in being NORMAL in those days.
Anyhoo, my first big crash was in 1999- I was a 7th year Senior in college and let's just say I was under a little bit of stress. My mother found out she had lung cancer and died within a year, I was in the midst of my first intimate relationship, I was pretty sure I was gonna finally flunk out of college, I had been prescribed Wellbutrin/Buspar for about 1 year,my younger siblings had been abandoned by their Dad back home and then I came down with what the school health clinic called a severe "Upper Respiratory Infection".
Well, let me tell you...it was more than that. All of sudden on top of the other "NORMAL" symptoms I was totally wiped out physically and emotionally by newer, scarier more acute symptoms---The main one being an overwhelming and disturbing POPPING, BUBBLING and TWITCHING sensation all over my body especially my head-thighs and feet, my arms and legs ached-not the muscles but even the skin was sensitive, nosebleeds, headaches and horrible PANIC and ANXIETY attacks like nothing I had ever felt. I was convinced I had Multiple Sclerosis, was having a Heart Attack or Brain Cancer all at one time. You have to understand I had never been "sick" in my life and had never been one to have the slightest concern about my health. I began, for the first time in my life to show up in local Emergency Departments explaining my symptoms and being told over and over nothing was wrong with me and that I was a HYPOCHONDRIAC, IT WAS ALL IN MY HEAD and my personal favorite EXACERBATED GRIEF REACTION. Eventually I became so despondent I had suicidal thoughts and ended up in a psych ward.
Needless to say I have been much quieter about the symptoms since then but the symptoms never went away...I mean the sinus infection/upper respiratory stuff comes and goes but POPBUBBLETWITCHING never stopped. I experience OI, Intolerance to Sun/Alcohol/Milk/Wheat/Meds, Migraines, Sleep Disorder NOS and now the worst.....BRAIN FOG and severe cognitive impairment....I know it is only a matter of time before I lose my job and my marriage. My husband is a doc and he says I am OVERLY SENSITIVE to my body sensations. I felt totally alone in my suffering until I found these forums while researching XMRV. I have not been tested but I have never been so sure of anything in my life as I am of this- ME/CFS is caused by a virus and I have been living with that virus in my body nearly all my life and it has caused physical and emotional trauma. With that being said I WILL BE AN ADVOCATE AND I WILL CONTINUE KICKING THIS VIRUS's ASS UNTIL I DIE. This VIRUS doesn't want to kill me...it wants to continue using me as a host so it can thrive. Well screw that. I AM NOT AFRAID ANYMORE. I AM NOT ASHAMED and I am not lazy, crazy or tired...I am SICK (ok...maybe a little crazy and tired). Ok, feels good to get that out. I'm gonna rest now.
I just wanted to say that I have occasionally experienced this since adolescence, several years before what I consider to have been the sudden onset of CFS.
Prior to onset, it occasionally happened after a very long hike or a very long bike ride. I believe that deconditioning following the onset of CFS then caused this bubbling feeling in the legs to occur following much less exertion.
Im not sure what causes this sensation, but somewhere I got the impression that it might be related to the valves located inside veins (but not arteries) which prevent the blood from moving backward sort of as though some of those were twitching but that could be completely wrong.
At any rate, I have not experienced this sensation for some time, but I might well if I used my legs to the point of exhaustion.
Haah so I'm not the only onewith this Weird symptom. I agree and think it's neurological. The symptom itself doesn't bother me too much, but I find the idea of neurological dammage less apealing. Is there anything that can be done?
Leaves I read IO as IQ, now that made me very foggy and frowning for a short while
I also have the heavy legs and the fizzy, buzzy feeling in my legs, wonder why not in the arms?
toluiwuzsic - have you not been able to access any form of treatment privately? The USA is streets ahead of our UK docs with anti-virals etc, hope you get some help for your rotten symptoms soon, unless we have an indepth understanding of our illness and feel competant enough to treat ourselves most of us need specialist help, we won't get better unless we have it.
Neuropathic pain - aka - chronic paraesthesias and dysaethesthias seem to be a common accompanyment to M.E./Fibromyalgia. They are certainly weird and that is the best way to describe neuropathic pain.
Mary B- thanks for the advice; currently i'm with a chiro and scheduled to see a naturopath soon. Alot of docs here get their info from the CDC so there's still alot of misinformation regarding "fatigue".
I was convinced I had MS initially and hearing about neuro damage...it's scary but I can recall reading about how the "myelin sheath" a protective covering of our muscles, is destroyed with MS. Now I'm hearing basically that even if it's not MS, some of the same damage may be occuring to our nerves and muscles.
I often feel like I'm on the verge of a seizure...I don't think I've ever had one but those electric shock feelings in the head and numbing of the face...my insticts are like seizure! siezure! Also my "sinus headaches" turned out to be migraines. I had no idea, I thought the nausea was caused by sinus drainage into my tummy! And sensitivity to noise and light was because my head ached!
Another symptom is the constant tremor/trembling, which others can see, when holding out limbs and digits of fingers. I can even do a trick with my legs when I'm sitting down...if i pump my feet from the ankle (like a motorcycle) my legs begin to just GO! I mean they dance and shake all on their own without any direction from me. Toddlers love it!