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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Poll: People active on Herpes Veridai Protocol

Are you participating in the herpes veridai protocol?

  • Yes - I've just started

    Votes: 0 0.0%
  • Yes - In the last 2-3 days

    Votes: 0 0.0%
  • Yes - Over 3 days on protocol

    Votes: 6 100.0%
  • Diagnosed with ME/CFS

    Votes: 3 50.0%
  • I think I have ME/CFS

    Votes: 2 33.3%
  • Diagnosed with another condition

    Votes: 1 16.7%
  • I think I have another condition

    Votes: 0 0.0%

  • Total voters
    6

BrightCandle

Senior Member
Messages
1,152
Had a diagnosis of ME/CFS with fibromylgia, got withdrawn when I requested a vaccine shot, so make of that what you will. So technically I am very sick with no diagnosis for 7 years and no outstanding medical appointments nor any further need for tests, so unexplained symptoms presumably until the pandemic ends then I will get my diagnosis back.
 

godlovesatrier

Senior Member
Messages
2,554
Location
United Kingdom
Not to get too political, but there was a report out today saying in ten years the UK economy will resemble Italy today if we don't do something and I have zero doubts about it being accurate.

As for the NHS my gf doesn't even think it will exist in ten years (for anything other than emergencies) and she's as a pro NHS as I am. Depressing yes, but makes you wonder what future us brits are walking into. I pray Scotland and Wales get there independence.
 

Judee

Psalm 46:1-3
Messages
4,494
Location
Great Lakes
I didn't vote in the poll because I'm guessing you are just looking for people who are doing the protocol and I am just in the "watch and wait" stage of that.

Re: ME/CFS diagnosis...I went to an environmental doctor for 11 years. I thought he made my diagnosis official because we talked about it all the time however when I got my medical records so I could apply for SSDI, I found he never put that...only fatigue or adrenal fatigue. :bang-head:

That made me a bit angry because some of the studies and trials only allow participation with an actual diagnosis. Of course it didn't help my SSDI case either. :(

I fit at least one criteria* in every category on the CCC.

Edit: *in some of the categories many or all of them fit. Just came back to give that clarification.
 
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godlovesatrier

Senior Member
Messages
2,554
Location
United Kingdom
It's very frustrating when you've had the diagnosis but it's never even on the file.

Mind you my doctor's never disagree when I give them my symptoms it's always down as chronic fatigue. Although makes you wonder why they don't use ME as I was actually diagnosed with that naming!!

Hopefully those of us participating can have some good results in the next few months. It takes awhile for the protocol to work if you go dow the non fasting route.