I don't know if other long-timers have experienced a change in the pattern of their blood pressure. For about 30 years of ME my BP was very low. Sometimes I could not even sit up in bed without blacking out and my BP would read about 60/50. Then suddenly the pattern changed and it shot up and I now have quite severe hypertension with readings sometimes of about 225/120 plus.
Three times when it has shot up rapidly I have experienced stroke-like attacks that have resulted in my admittance to hospital followed by three months severe ME relapse. These attacks have caused some permanent damage.
I do recall reading about two years ago that some Australian research suggested that the illness impacts on our brain's ability to respond to and control sudden increases in BP.
At the same time that my BP changed from very low to very high I....................
now how I can I phrase this in a ladylike way???
..............

....................okay..........
.I can't..........I stopped ........er.......peeing for England, which had been a constant feature of the illness. I guess by retaining fluid my blood volume increased and my BP shot skyward. Is this a common feature of long-term ME?
C.G.