Podcast: Medical Error Interviews

ScottTriGuy

Stop the harm. Start the research and treatment.
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(Moderators - I was unsure where to put this thread, please move it to more appropriate forum if needed - thanks.)

Hi all,

I've been working on this project for far longer then I thought it would take - turns out there is a lot more work involved then anticipated (while working and doing advocacy stuff and being sick) in creating a podcast.

Nevertheless, I'm happy to finally be slowly rolling out the launch - here's the logo I had created:

Podcast MEI logo.jpg

ME is an embedded medical error

I consider ME to be an embedded medical error in our medical systems: it begins with a category mistake (that ME is psych), and that error impacts (impedes) different institutions:

- Funding Institutions: research funding is a small fraction of what it should be
- Medical Institutions: medical testing and treatment is often denied (yet were pushed toward psych 'treatment') and we're often subjected to iatrogenic harm and trauma
- Political Institutions: are at best indifferent
- Insurance institutions: deny disease, deny benefits
etc...

But I thought a podcast only on ME would be mostly speaking to our bubble - but since medical error is the 3rd leading cause of death, that means many multiples of more people will have been affected by medical error.

I interview a wide variety of medical error incidents and diseases, but since ME is the most egregious and global medical error (imo), our stories will be a frequent topic.

But the podcast isn't just about the medical error, it is also about raising awareness and seeking solutions.

I interview 3 groups of people:

- survivors of medical error (or their surviving family)
- health care workers who have participated or witnessed medical error (I have software to disguise their voice)
- advocates and policy makers - the folks who are, or should be, making our systems safer.

I especially like interviewing people who fit 2 of those groups.

Podcast Secrets Stories.jpg

I already have about a dozen interviews recorded, but now comes the laborious task of creating show notes that are time stamped and editing the recording (it has been a steep learning curve with Final Cut Pro) and then publishing on various platforms.

Inaugural Episode of Medical Error Interviews - Jeff Wood

I am so very pleased to launch the podcast with an interview with our own @jeff_w

Many folks on PR will be familiar with Jeff's incredible story and his efforts to bring awareness of how CCI relates to ME.

Jeff's life story is littered with medical error, stretching back to when he was a small child. As Jeff's condition worsened, he became the repeated victim of medical abuse.

Fortunately, Jeff is both resilient and smart, and using his research skills from his death/sick bed in the hospital, and in spite of much push back from the medical establishment, he was able get a diagnosis and life changing treatment.

Finding Medical Error Interviews

I am listing the podcast on multiple platforms, but the biggie is iTunes, so please subscribe to the podcast there, and leave comments too (they help it get a higher rating = more awareness).

I have also listed it on my Patreon site, and you can hear Jeff and I chat there as well: https://www.patreon.com/MedicalErrorInterviews/posts

Please also share on social media so more people become aware of medical error and ME and we can make our access to health care safer...and eventually more equitable.

And if you have a compelling medical error story you would like to share - or know someone who does, PM me with a brief description and we'll take it from there.

Thanks,
Scott
 
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@ScottTriGuy I just listened to your entire podcast with @jeff_w at Patreon and am in awe! It was so well done and am so proud to know both of you guys :star::star::star: I actually never listen to podcasts but just subscribed to the series at iTunes.

I hope this is okay to say, Jeff, but hearing you recount your story back to 2014 (but especially the 4 months that you were in the hospital in SoCal) was traumatic for me just to listen to as your friend, so I can only imagine how it must have felt to re-tell it?! :jaw-drop: But it was very brave of you and you are helping so many people by so openly sharing your story. And many thanks to you, Scott, for taking on this huge project to address medical errors, especially in the complex illness community.

I so related to losing years of my life with doctors who did not believe that I was ill and how traumatizing that was. When you shared in the podcast about your first visit with Dr. K, it was so eerily familiar and brought me back to 2014 (and I also was not using a wheelchair yet b/c I could not admit that I needed one). But four months later, I had to start using one and then used it for almost four years until my illness went into this "remission" -- although different underlying causes, different treatments, and not a complete remission like yours.

I really related to so much of what you shared and thank you both again for taking the time and effort to do the interview and podcast :trophy:
 

ScottTriGuy

Stop the harm. Start the research and treatment.
Messages
1,267
Likes
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Location
Toronto, Canada
Thanks @Gingergrrl and @Inara

I dare say that Jeff's experience with very severe ME and CCI is unto itself traumatic, but what he experienced from the medical system - repeatedly - is potentially even more traumatic.

I hope the more people who hear our stories and health care experiences, the more understanding and empathy and support and funding and so on....we'll receive.