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Hi all,
I'm still very new to the forums, but not new to having ME - had it since approximately 2012.
Essentially, I live alone, by no choice of my own. My mum passed away in 2008, and my dad is now in his 70s and also the main carer for his partner.
My anxiety has had me thinking lately - although I can't say for definite, to me it seems like there has been a gradual decline in my overall functioning over the time since I became ill. The 'steps' in this decline seem to often be preceded by emotional stress of some kind.
Although it may be a gradual decline, a decline is a decline - so I'm trying to figure out some sort of contingency for if things do reach the point when I can no longer fend for myself at all.
I live in the UK, and therefore have literally had only CBT and GET offered as 'treatments' by the NHS - although CBT has helped me to get a handle on my health anxiety a little, it's done nothing for my ability to function. I haven't (and likely wouldn't) touch GET with a barge pole, given the horror stories around it making people rapidly and substantially worse.
As such, I guess I'm trying to figure out if there's any way to put some sort of plan in place so I don't end up effectively starving to death if I can't function anymore (worst case scenario, of course).
Equally, if anyone knows of any medical options in the UK either outside the NHS or who I could ask my GP to refer me to?
I apologise for the long and ranting post, this stuff has been bouncing around my head for some time now.
I'm still very new to the forums, but not new to having ME - had it since approximately 2012.
Essentially, I live alone, by no choice of my own. My mum passed away in 2008, and my dad is now in his 70s and also the main carer for his partner.
My anxiety has had me thinking lately - although I can't say for definite, to me it seems like there has been a gradual decline in my overall functioning over the time since I became ill. The 'steps' in this decline seem to often be preceded by emotional stress of some kind.
Although it may be a gradual decline, a decline is a decline - so I'm trying to figure out some sort of contingency for if things do reach the point when I can no longer fend for myself at all.
I live in the UK, and therefore have literally had only CBT and GET offered as 'treatments' by the NHS - although CBT has helped me to get a handle on my health anxiety a little, it's done nothing for my ability to function. I haven't (and likely wouldn't) touch GET with a barge pole, given the horror stories around it making people rapidly and substantially worse.
As such, I guess I'm trying to figure out if there's any way to put some sort of plan in place so I don't end up effectively starving to death if I can't function anymore (worst case scenario, of course).
Equally, if anyone knows of any medical options in the UK either outside the NHS or who I could ask my GP to refer me to?
I apologise for the long and ranting post, this stuff has been bouncing around my head for some time now.
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