Interesting thread 
I read a really useful book called How To Live Well With Chronic Pain and Illness by Toni Bernhard. She talks about acceptance a lot, and how to get there. It's really helped me on my journey.
There's also a lot of stuff out there about disability/ability. Disability is a social construct. I'm currently challenging myself to value myself beyond how well I fit the capitalist ideal of a super productive worker and consumer.
This is how I 'move on'. I let go of ideas about myself that I had before, and I adapt to my new self. I look in new places for ideas that fit my life now.
I am in the process of letting go of hope for a cure, but I am hopeful that my body will eventually heal itself, if I continue to listen to it carefully and act accordingly. Letting go of hope means I won't be disappointed, which can be crushing. Me letting go of hope is not going to affect whether or not a cure eventually comes along. I can still be an activist/donate to research regardless of how soon the cure will be invented.
I do believe a cure will come eventually, but not necessarily within the next 10 years. So I guess I am still hopeful in a way! Just not for myself, not for a cure happening for me.
I have to accept my life as it is now in order to be happy. I'm actually enjoying the process of learning more about myself through this lens of this illness. I am growing as a person and becoming more wise.
I read a really useful book called How To Live Well With Chronic Pain and Illness by Toni Bernhard. She talks about acceptance a lot, and how to get there. It's really helped me on my journey.
There's also a lot of stuff out there about disability/ability. Disability is a social construct. I'm currently challenging myself to value myself beyond how well I fit the capitalist ideal of a super productive worker and consumer.
This is how I 'move on'. I let go of ideas about myself that I had before, and I adapt to my new self. I look in new places for ideas that fit my life now.
I am in the process of letting go of hope for a cure, but I am hopeful that my body will eventually heal itself, if I continue to listen to it carefully and act accordingly. Letting go of hope means I won't be disappointed, which can be crushing. Me letting go of hope is not going to affect whether or not a cure eventually comes along. I can still be an activist/donate to research regardless of how soon the cure will be invented.
I do believe a cure will come eventually, but not necessarily within the next 10 years. So I guess I am still hopeful in a way! Just not for myself, not for a cure happening for me.
I have to accept my life as it is now in order to be happy. I'm actually enjoying the process of learning more about myself through this lens of this illness. I am growing as a person and becoming more wise.