• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Phoenix Rising Video Library

Mark

Mark

Senior Member
Messages
5,238
Location
Sofa, UK

SORRY FOLKS - I'VE TOO MUCH WORK ON TO KEEP THIS THREAD UP TO DATE. IF SOMEBODY WANTS TO TAKE THE JOB ON, LET ME KNOW...MEANWHILE, PLEASE NOTE THAT THERE ARE SOME LINKS TO MORE VIDEOS AT THE BOTTOM OF THE THREAD.


INDEX

Awareness Videos on ME,CFS,XMRV, WPI
Informative Videos by forum members and other patients, set to music

Doctors on XMRV
The latest word from top doctors and researchers

The Whittemore-Peterson Institute
Videos from and about the WPI

Patients and Patient Groups
Patients tell it like it is

Psychiatry and ME/CFS
Psychiatrists on ME/CFS, Patients on Psychiatrists

News Reports
TV news reports


LATEST ADDITIONS !


XMRV: Requiem for a Spectre

[video=youtube;P_JUiMjKxzw]http://www.youtube.com/watch?v=P_JUiMjKxzw&feature=channel[/video]


Full XMRV blood tests available to UK & Europe

[video=youtube;8aTbaIt1iug]http://www.youtube.com/watch?v=8aTbaIt1iug&feature=channel[/video]


1st International Workshop on XMRV - Q&A Wrap-up Session

[video=youtube;0r7M_ZEjQ-s]http://www.youtube.com/watch?v=0r7M_ZEjQ-s[/video]


All About M.E.

McCarrick Films:
"A documentary about M.E sufferer Laura Fursland. A promising young music student , Laura has been living with M.E (Myalgic Encephlomyelitis) for the last two years and this film intends to highlight the problems and issues that arise with this often misunderstood condition.
With interviews from Laura's mother Jeanette and Dr Charles Shepherd (Chief Medical Advisor to the M.E Association) the film is an emotional and gripping story about one girls struggle to lead a normal life with an illness that few understand."

Part 1:
[video=youtube;dWp5W7kHEVo]http://www.youtube.com/watch?v=dWp5W7kHEVo&NR=1&feature=related[/video]

Part 2:
[video=youtube;-XhCekXdTBY]http://www.youtube.com/watch?v=-XhCekXdTBY&NR=1&feature=related[/video]


The CDC vs CFS/ME....or How NOT To Find A Retrovirus

[video=youtube;M6QHLMi_mgY]http://www.youtube.com/watch?v=M6QHLMi_mgY&feature=channel[/video]



COMING SOON !
THE FEATURE DOCUMENTARY
"WHAT ABOUT ME?"

US and UK TRAILERS:
http://whataboutme.biz/

Facebook: http://www.facebook.com/pages/WHAT-ABOUT-ME/105992479431834?ref=ts
Double D Productions: www.digitaldocumentaries.co.uk, http://vimeo.com/user3481807
Marin Finerty (Art Direction, motion graphics): http://vimeo.com/marinfinerty

Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?3859-What-about-ME-documentary

YouTube trailer:
[video=youtube;rUBsz4BH6G4]http://www.youtube.com/watch?v=rUBsz4BH6G4&feature=related[/video]
​
 
Mark

Mark

Senior Member
Messages
5,238
Location
Sofa, UK
Awareness Videos on ME, CFS, XMRV, WPI

ME/CFS PHOENIX RISING VIDEO

[video=youtube;00BZCjVK_6I]http://www.youtube.com/watch?v=00BZCjVK_6I&feature=channel[/video]
Forum Thread:
http://www.forums.aboutmecfs.org/content.php?111-Phoenix-Rising-YouTube-Video-Thread
Forum Article:
http://www.forums.aboutmecfs.org/showthread.php?4594-Article-Phoenix-Rising-YouTube-Video-Thread
Forum Press Release:
http://www.forums.aboutmecfs.org/showthread.php?4859-Phoenix-Rising-Video-press-release
Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?2478-Phoenix-Rising-YouTube-Video-Thread

XMRV: Requiem for a Spectre

[video=youtube;P_JUiMjKxzw]http://www.youtube.com/watch?v=P_JUiMjKxzw&feature=channel[/video]
Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?8010-Amazing-Video!!!-Must-See!!!

Full XMRV blood tests available to UK & Europe

[video=youtube;8aTbaIt1iug]http://www.youtube.com/watch?v=8aTbaIt1iug&feature=channel[/video]
Forum Discussion:
http://www.forums.aboutmecfs.org/sh...btain-XMRV-testing-in-the-UK-simply-explained

XMRV in CFS/ME

[video=youtube;3XOor24YYmw]http://www.youtube.com/watch?v=3XOor24YYmw&feature=channel[/video]
Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?5885-XMRV-YouTube-Video


IS ME/CFS a type of AIDS?

[video=youtube;rpgYTsCtcYw]http://www.youtube.com/watch?v=rpgYTsCtcYw&feature=channel[/video]


XMRV (The Retrovirus)

[video=youtube;HY5Ph_9pL5g]http://www.youtube.com/watch?v=HY5Ph_9pL5g&feature=related[/video]
Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?6129-XMRV-you-tube-video-asking-for-release-of-FDA-NIH-study


The XMRV Epidemic - Are You Next?

[video=youtube;wVsnOFRcQAE]http://www.youtube.com/watch?v=wVsnOFRcQAE&feature=channel[/video]
Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?6618-XMRV-Awareness-Video


Third positive MULV study: Cancer link to XMRV infection & LV Diastolic Dysfunction in CFS

[video=youtube;S3UwkdzBaro]http://www.youtube.com/watch?v=S3UwkdzBaro&feature=channel[/video]

Forum Discussion:
http://www.forums.aboutmecfs.org/sh...e-video-about-his-poster-at-the-XMRV-Workshop


CFS Patients Address the CDC

[video=youtube;y7VdXX9P58w]http://www.youtube.com/watch?v=y7VdXX9P58w&feature=channel[/video]
Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?6489-My-new-cfs-video

XMRV positive study into CFS still on hold!!! (Government blocks publication).mov



XMRV Positive study into CFS still on hold!!! (Government blocks publication)

[video=youtube;vz8pwuDa8aM]http://www.youtube.com/watch?v=vz8pwuDa8aM&feature=related[/video]


The CDC Hustle

[video=youtube;_XjyQbK5ttk]http://www.youtube.com/watch?v=_XjyQbK5ttk&feature=channel[/video]
Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?6502-Do-the-Hustle


The CDC vs CFS/ME....or How NOT To Find A Retrovirus

[video=youtube;M6QHLMi_mgY]http://www.youtube.com/watch?v=M6QHLMi_mgY&feature=channel[/video]


The Realities of ME/CFS

[video=youtube;nb-mkFxRpGM]http://www.youtube.com/watch?v=nb-mkFxRpGM&feature=channel[/video]



Rising Tide - An XMRV/CFS Story

[video=youtube;yUUGJ3yE-Gg]http://www.youtube.com/watch?v=yUUGJ3yE-Gg&feature=related[/video]

Alternate Music:
http://www.youtube.com/watch?v=HFIsP9_-w5A
Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?6769-My-New-YouTube-Video-CFS-Epidemics


The Whittemore Peterson Institute - Thankyou - XMRV Chronic Fatigue Syndrome CFS ME

[video=youtube;q0MTNRpupLU]http://www.youtube.com/watch?v=q0MTNRpupLU&feature=player_embedded[/video]


XMRV Retrovirus Research Appeal - Chronic Fatigue Syndrome CFS ME

[video=youtube;iWvWs1rGhrE]http://www.youtube.com/watch?v=iWvWs1rGhrE&feature=related[/video]


15 Years Ago...

Living Hell - The Real World of Chronic Fatigue Syndrome
(produced by Authentic Pictures in association with the CFIDS Foundation, San Francisco, 1992-1993)

http://vimeo.com/9714250

Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?6404-Historical-video-of-CFS-please-watch


Primetime Live c.1996

http://vimeo.com/9714250

Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?6404-Historical-video-of-CFS-please-watch


Have You Taken Your Sedative?

Loads more XMRV and CFS videos on thx1138mindlock's youtube channel:
http://www.youtube.com/profile?user=thx1138mindlock#g/u
 
Mark

Mark

Senior Member
Messages
5,238
Location
Sofa, UK
Doctors on XMRV

1st International Workshop on XMRV - Q&A Wrap-up Session

[video=youtube;0r7M_ZEjQ-s]http://www.youtube.com/watch?v=0r7M_ZEjQ-s[/video]
High quality stream direct from NIH:
http://videocast.nih.gov/Summary.asp?File=16098
http://videocast.nih.gov/summary.asp?live=9582


CFS Advisory Committee (CFSAC)

All CFSAC Meetings (HHS.GOV)

http://www.hhs.gov/advcomcfs/meetings/index.html

CFSAC May 2010

Right-click the video and select 'Watch on YouTube' to see subsequent parts:
[video=youtube;l0WvLnj4-Cg]http://www.youtube.com/watch?v=l0WvLnj4-Cg[/video]

Why John Coffin doesn’t sleep well

John Coffin, Professor of Genetics and Molecular Microbiology at Tufts University, studies the molecular biology and evolution of retroviruses. He wrote a commentary (A new virus for old diseases?) that accompanied the publication by Lombardi and colleagues of the finding of the new retrovirus XMRV in patients with chronic fatigue syndrome, and has spoken widely about whether this virus has a causative role in the disease. In this video he expresses cautious optimism about the role of XMRV (and related murine retroviruses) in human disease.

http://www.virology.ws/2010/10/02/why-john-coffin-doesnt-sleep-well/


Dr Klimas on XMRV - Oct 15, 2009 - ME-CFSCommunity.com

http://cfsknowledgecenter.ning.com/video/klimas-on-xmrv

Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?701-Nancy-Klimas-On-Video-on-CFSKnowledgeCenter


Dr Louis Katz - Aug 16, 2010 - XMRV and Blood Safety

Hosted by the CFIDS Association of America, Moderated by Kim McCleary [video=youtube;ex6iS_2RqiY]http://www.youtube.com/watch?v=ex6iS_2RqiY[/video]


Dr Bell - Jan 15, 2010 - Lecture on XMRV

http://vimeo.com/9143012
http://vimeo.com/9254598
http://vimeo.com/9261929

Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?2953-Dr.-Bells-Lecture-in-Good-Video


Dr Anthony Komaroff - The Latest Research on CFS

In six parts, totalling about 1 hour.

[video=youtube;nLrL0y1ysV8]http://www.youtube.com/watch?v=nLrL0y1ysV8[/video]

Parts 2-6:
http://www.youtube.com/watch?v=ufK7PdJbapE&feature=related
http://www.youtube.com/watch?v=lchPW7vLep0&feature=related
http://www.youtube.com/watch?v=oOcDfd5sA1k&feature=related
http://www.youtube.com/watch?v=E1zmmL5hY84&feature=related
http://www.youtube.com/watch?v=VwMCw1A-Ms8&feature=related

Charts referred to in the presentation:
http://www.cfids.org/webinar/slides-091610.pdf


Prof. De Meirleir and Dr. Byron Hyde - November 09 - Video interview
Prof. De Meirleir talks about How his career began, Approach and treatment, Viruses, Elaine De Freitas, The H2S test, XMRV, The future.

[video=youtube;cu08EOwFVns]http://www.youtube.com/watch?v=cu08EOwFVns[/video]
[video=youtube;7u78b-ahi74]http://www.youtube.com/watch?v=7u78b-ahi74[/video]


Ila Singh talks XMRV, replication, drugs, and animal studies

http://www.ksl.com/index.php?nid=148&sid=10239583&s_cid=E0002

Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?4111-Ila-Singh-talks-XMRV-replication-drugs-and-animal-studies-%28article-video%29


Peterson/de Meirleir - 26 May 2010 - Q&A at presentation

[video=youtube;7B5kghQL3x0]http://www.youtube.com/watch?v=7B5kghQL3x0[/video]

Forum Discussion:
http://www.forums.aboutmecfs.org/sh...-Meirleir-presentation-26-May&highlight=video


Twiv - This week in Virology, Interview with Prof Myra McClure

http://mwvideo.s3.amazonaws.com/ICAAC-TWiV/TWiV99.wmv

Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?7749-Twiv-This-week-in-Virology-Interview-with-Prof-Myra-McClure!


Dr Yang - Oct 2009 - MedHelp CFS Video

http://www.medhelp.org/health_videos/Chronic-Fatigue/show/2872
 
Mark

Mark

Senior Member
Messages
5,238
Location
Sofa, UK
The Whittemore-Peterson Institute

Whittemore Peterson Institute: An Introduction

[video=youtube;KcQ2aXIIcao]http://www.youtube.com/watch?v=KcQ2aXIIcao&feature=related[/video]


XMRV - Whittemore Peterson Institute Opens

[video=youtube;GQJ60UdWz0c]http://www.youtube.com/watch?v=GQJ60UdWz0c&feature=related[/video]

[video=youtube;4qLrFxxEf6w]http://www.youtube.com/watch?v=4qLrFxxEf6w&feature=related[/video]


Andrea Whittemore's Speech - WPI/CMM Inauguration

[video=youtube;ixinFD02uv0]http://www.youtube.com/watch?v=ixinFD02uv0&feature=related[/video]


Annette Whittemore's Speech - WPI/CMM Inauguration

[video=youtube;TMmPTwdmOBM]http://www.youtube.com/watch?v=TMmPTwdmOBM&feature=related[/video]

Full length video with speeches from senators, house members, and local officials:
http://imedia.unr.edu/cmm/CMM_Grand_Opening.html

Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?7051-WPI-Andrea-amp-Annette-s-powerful-words

http://www.forums.aboutmecfs.org/showthread.php?7053-OPENING-of-WPI-video


WPI congratulates Alter and Lo

[video=youtube;ne7if7FKJFg]http://www.youtube.com/watch?v=ne7if7FKJFg&feature=related[/video]


Judy Mikovits reacts to the Lo-Alter paper

[video=youtube;9ZEwQUg7o6I]http://www.youtube.com/watch?v=9ZEwQUg7o6I&feature=related[/video]

Forum Discussion:
http://www.forums.aboutmecfs.org/sh....-Judy-Mikovits-Talking-about-The-Alter-paper

XMRV Breakthrough research for ME/CFS, by WPI (Nevada Newsmakers)


[video=youtube;_TQzlL0nd6I]http://www.youtube.com/watch?v=_TQzlL0nd6I&feature=related[/video]


[video=youtube;gDL_-qThmXs]http://www.youtube.com/watch?v=gDL_-qThmXs&feature=related[/video]
 
Mark

Mark

Senior Member
Messages
5,238
Location
Sofa, UK
Patients and Patient Groups

Patient Groups


CHANGES trailer:

[video=youtube;XC0tSgPArrE]http://www.youtube.com/watch?v=XC0tSgPArrE[/video]

Dystautonomia Information Network:
http://www.dinet.org/
Forum discussion:
http://www.forums.aboutmecfs.org/showthread.php?276-Dinet-s-trailer-to-new-video-on-Dysautonomia


Patient Perspectives


Pain, Brain, and Energy Drain

[video=youtube;-zbG9ruHeyo]http://www.youtube.com/watch?v=-zbG9ruHeyo&feature=related[/video]

Forum Discussion:
http://www.forums.aboutmecfs.org/sh...of-the-best-video-ever-on-CFS-by-Rachael-Hall


"Dear Sec Sebelius, Dear Director Collins" Bedroom Video Campaign

[video=youtube;8t1Xqp1LDxM]http://www.youtube.com/watch?v=8t1Xqp1LDxM&feature=related[/video]

Forum Discussion:
http://www.forums.aboutmecfs.org/sh...quot-Dear-Sec-Sebelius-Dear-Dir.-Collins-quot

Laurel's October 2009 CFS/CFSAC Testimony

[video=youtube;LvweCk44WHs]http://www.youtube.com/watch?v=LvweCk44WHs&feature=related[/video]


All About M.E.

McCarrick Films:
"A documentary about M.E sufferer Laura Fursland. A promising young music student , Laura has been living with M.E (Myalgic Encephlomyelitis) for the last two years and this film intends to highlight the problems and issues that arise with this often misunderstood condition.
With interviews from Laura's mother Jeanette and Dr Charles Shepherd (Chief Medical Advisor to the M.E Association) the film is an emotional and gripping story about one girls struggle to lead a normal life with an illness that few understand."

Part 1:
[video=youtube;dWp5W7kHEVo]http://www.youtube.com/watch?v=dWp5W7kHEVo&NR=1&feature=related[/video]

Part 2:
[video=youtube;-XhCekXdTBY]http://www.youtube.com/watch?v=-XhCekXdTBY&NR=1&feature=related[/video]

Forum Discussion:
http://www.forums.aboutmecfs.org/showthread.php?7342-New-UK-ME-film-%28with-similar-title!%29-quot-All-About-ME-quot-%28MEA-post%29


XMRV, Greg Crowhurst, Oct 9 2009

[video=youtube;UoL69mAGrQQ]http://www.youtube.com/watch?v=UoL69mAGrQQ&feature=related[/video]


I Won't be Bothering My Doctor Again!

[video=youtube;MhDfQGQrKgE]http://www.youtube.com/watch?v=MhDfQGQrKgE&feature=channel[/video]


The First UK Based XMRV Study Has Been Published

[video=youtube;KwGA6coj5FM]http://www.youtube.com/watch?v=KwGA6coj5FM&feature=related[/video]
 
Mark

Mark

Senior Member
Messages
5,238
Location
Sofa, UK
Psychiatry and ME/CFS

Psychiatrists on ME/CFS

"ME CFS Doctors trained to neglect" - Training videos for English GP's on how to deal with CFS patients

Part 1:
[video=youtube;goz_tTaWmfE]http://www.youtube.com/watch?v=goz_tTaWmfE&feature=related[/video]

Part 2:
[video=youtube;cO7ua4IB5Hs]http://www.youtube.com/watch?v=cO7ua4IB5Hs&feature=related[/video]

Part 3:
[video=youtube;KYQpFtl2xe8]http://www.youtube.com/watch?v=KYQpFtl2xe8&feature=related[/video]

Part 4:
[video=youtube;k5qalCDEOis]http://www.youtube.com/watch?v=k5qalCDEOis&feature=related[/video]

Forum Discussion:
http://forums.aboutmecfs.org/showth...English-GP-s-on-how-to-deal-with-CFS-patients


Introduction by RSM Dean Dr Scadding

http://rsm.mediaondemand.net/player.aspx?EventID=1294


What is Chronic Fatigue Syndrome & what is ME? - Professor Peter White, Barts & the London School of Medicine

http://rsm.mediaondemand.net/player.aspx?EventID=1291


Epidemiology - Professor Simon Wessely, King's College London

http://rsm.mediaondemand.net/player.aspx?EventID=1293


Pathophysiology - Dr Anthony Cleare, Institue of Psychiatry, London

http://rsm.mediaondemand.net/player.aspx?EventID=1292


Assessment: general practitioners' approach - Professor Chris Dowrick, University of Liverpool

http://rsm.mediaondemand.net/player.aspx?EventID=1334


Assessment: psychiatrist's approach - Professor Matthew Hotopf, Institute of Psychiatry, London

http://rsm.mediaondemand.net/player.aspx?EventID=1333


M.E.- The Patient Perspective - Sir Peter Spencer

http://rsm.mediaondemand.net/player.a...


Management: NICE Guidelines - Professor Richard Baker

http://rsm.mediaondemand.net/player.a...


CBT and GET - Professor Rona Moss-Morris

http://rsm.mediaondemand.net/player.a...


What drugs can I use? - Dr Alastair Miller

http://rsm.mediaondemand.net/player.a...



Patients on Psychiatry


XMRV Professors: White and Wessely discuss Einstein and Paxman

[video=youtube;Dd_LpEoVEDo]http://www.youtube.com/watch?v=Dd_LpEoVEDo[/video]

[video=youtube;Nuu6Tj235j4]http://www.youtube.com/watch?v=Nuu6Tj235j4&NR=1[/video]

XMRV Professors: Free Lunch is Evidence-Based

[video=youtube;j5TekCOJxgU]http://www.youtube.com/watch?v=j5TekCOJxgU&feature=channel[/video]

XMRV Professors: You couldn't make it up

[video=youtube;E9Pnz4xXa2M]http://www.youtube.com/watch?v=E9Pnz4xXa2M&feature=channel[/video]

Simon Wessely Child Abuse Scandal (Ewan Proctor)

[video=youtube;L5foBQ1TzV0]http://www.youtube.com/watch?v=L5foBQ1TzV0&feature=related[/video]
 
L

leela

Senior Member
Messages
3,290
Couldn't see that this Komaroff talk was in here anywhere. In six youtube parts, totalling about 1 hour; really great for informing family and friends:

Part 1
http://www.youtube.com/watch?v=nLrL0y1ysV8&feature=related
PArt 2
http://www.youtube.com/watch?v=ufK7PdJbapE&feature=related
PArt 3
http://www.youtube.com/watch?v=lchPW7vLep0&feature=related
PArt 4
http://www.youtube.com/watch?v=oOcDfd5sA1k&feature=related
Part 5
http://www.youtube.com/watch?v=E1zmmL5hY84&feature=related
PArt 6
http://www.youtube.com/watch?v=VwMCw1A-Ms8&feature=related

Some of the charts he refers to are here:
http://www.cfids.org/webinar/slides-091610.pdf
 
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