@marygelpi, that's a really GREAT video! You're an AMAZING advocate! I think you communicated exceptionally helpful facts (e.g. the funding level for hay fever and male pattern baldness!) And I think you explained your struggle with the illness and the nature of its symptoms really helpfully. It's tough to watch you tell your story, and I'm sorry that you've struggled for so long. Thanks so much for getting the video made (i assume you had some responsibility for it being commissioned?) and thanks for sharing it with us. BTW, your doctor seems great!
Your petition is still the most successful petition I've seen in relation to ME/CFS. Thanks again for your work on it.
BTW, i thought your video deserved its own thread so I've started one here:
http://forums.phoenixrising.me/inde...n-struggles-with-the-invisible-disease.45769/
Your petition is still the most successful petition I've seen in relation to ME/CFS. Thanks again for your work on it.
BTW, i thought your video deserved its own thread so I've started one here:
http://forums.phoenixrising.me/inde...n-struggles-with-the-invisible-disease.45769/
Thank you for starting a thread! We need to strategize on how to get 50,000 signatures by the time the next set of protests happen, which I believe is in September. We're only 12,000 away- it ain't no thang! Jk. I don't necessarily HAVE to present the petition then, there is no cutoff so far, but I think it's an appropriate time to do it, and how amazing would it be to have 50,000 names behind us! The protesters could use and scatter the papers of names hah. Anyway...I'm up for any ideas. And would appreciate all the help yall can provide in sharing this thing basically everywhere
https://www.change.org/p/increase-research-funding-for-me-cfs