merylg
Senior Member
- Messages
- 841
- Location
- Sydney, NSW, Australia
I can confirm to anyone outside US: no Vistide until further notice.
I've just spent the last hour reeling from a call I made to my sourcing company that says the six mos' supply they said had for me was in fact non-existent. The recall was 15/2/13, it's now the end of april. I don't expect to be able to get any vistide at all in the near future.
I cannot put into words the despair I am feeling, as I'd been counting on this for three months while also trying valcyte and doing terrible on it. I was already bedridden at half tabs every three or four days, so it's just dawning on me now that I'll have to go back to being bedbound until God knows whenever vistide again becomes available.
So sorry to hear this vli. I too am becoming more and more bedbound. Today I am starting Valtrex (Valaciclovir) for what it is worth. I cannot wait any longer for the powers that be to properly investigate and/or offer me any antivirals or other treatments. So much time has already been wasted & my health is now rapidly declining.
My hand eczema had a good response to Doxycycline 100 mg/day over 5 days. This is a good sign. So plan is to revisit Doxycycline next. Probably in combo with Clarythromycin & Tinidazole. BUT first to see how I tolerate an antiviral...as I react to most things! If I tolerate it & it helps, maybe I would need to be on it a long time? Then I read it is inactive against latent viruses in nerve ganglia