Hi everyone,
After my original post, research and ideas Is ME/CFS caused by biological stress and perpetuated by high catecholamines and low blood volume? I have a major update and turn around on this topic, apologies for not writing sooner it took many months to figure out what has been going on.
I was able to get my blood volume measured accurately by Daxor BVA-100 machine and radioisotope method twice at two different locations over a month apart and the results were completely unexpected. I did it the second time over a month after at a different hospital because the first results were so shocking.
My plasma volume is in extreme excess, i.e. I have hypervolemia. This is completely opposite of what I expected and after experiencing many symptoms that people who believe they have low blood volume have I would say you cannot know at all based on symptoms alone, you must get the Daxor blood volume analysis test in order to definitively know what is your blood volume status is. Also I've never taken any blood volume enhancers because after trying things like desmopressin, florinef, and IV saline they just made me feel worse right away so I stopped a long time ago.
If ME/CFS caused you to have the following symptoms (as it did with me):
Also this means those of you who thought you had this mild-to-moderate diabetes insipidus (which I did see my posts) it could be completely wrong, it could be your body trying to respond to excess plasma volume!
After knowing I have hypervolemia I was referred to a cardiologist, hematologist, and nephrologist to do all these tests and procedures to discover why I had hypervolemia. The medical literature states that you essentially get hypervolemia because of three major reasons:
Anyway, all this has been disheartening because everything with this disease involves so much effort to find answers and always ends up with doctors completely at a loss.
After my original post, research and ideas Is ME/CFS caused by biological stress and perpetuated by high catecholamines and low blood volume? I have a major update and turn around on this topic, apologies for not writing sooner it took many months to figure out what has been going on.
I was able to get my blood volume measured accurately by Daxor BVA-100 machine and radioisotope method twice at two different locations over a month apart and the results were completely unexpected. I did it the second time over a month after at a different hospital because the first results were so shocking.
My plasma volume is in extreme excess, i.e. I have hypervolemia. This is completely opposite of what I expected and after experiencing many symptoms that people who believe they have low blood volume have I would say you cannot know at all based on symptoms alone, you must get the Daxor blood volume analysis test in order to definitively know what is your blood volume status is. Also I've never taken any blood volume enhancers because after trying things like desmopressin, florinef, and IV saline they just made me feel worse right away so I stopped a long time ago.
If ME/CFS caused you to have the following symptoms (as it did with me):
- A generally lowered heart rate than you had before the disease with only some periods of tachycardia
- Higher blood pressure than you had before the disease
- A bounding pulse, you feel your heart beating hard and at certain times with each pulse the blood movement actually shakes your head or upper body
- Polyuria, i.e. increased urination, at least for many months to a year or more in the beginning of the disease
- Low ADH/vasopressin and low aldosterone
- Swelling in the abdomen (which might feel like gastrointestinal)
- Dizziness
- Your body will lower your heart rate in response to hypervolemia and you will get a bounding pulse.
- Your blood pressure will go up when there is excess blood volume.
- Your body will attempt to correct the excess plasma volume by reducing your ADH/vasopressin and aldosterone levels causing your kidneys to pump out a lot of urine.
- You will get abdominal swelling as another response by your body to correct the hypervolemia and move excess water out of your vascular system and into tissues.
- Severe hypervolemia will also cause reduced tissue oxygenation just like hypovolemia, causing dizziness and other symptoms.
Also this means those of you who thought you had this mild-to-moderate diabetes insipidus (which I did see my posts) it could be completely wrong, it could be your body trying to respond to excess plasma volume!
After knowing I have hypervolemia I was referred to a cardiologist, hematologist, and nephrologist to do all these tests and procedures to discover why I had hypervolemia. The medical literature states that you essentially get hypervolemia because of three major reasons:
- Heart failure or other heart-related problems
- Kidney failure or other kidney-related problems
- Excess protein in the blood (excess antibodies i.e. immunoglobulins or other e.g. albumin)
Anyway, all this has been disheartening because everything with this disease involves so much effort to find answers and always ends up with doctors completely at a loss.
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