I have inflammatory spinal and back pain (to the left of my spine) that comes and goes and that is part of my ME/CFS. It flares up particularly badly when I am stressed, which I have been over the past few months. The pain is now enough of a problem that I need medication.
So far, I have tried mefenamic acid + paracetomol (ineffective), cocodomol + paracetomol (made me too dopey to function), naproxen + paracetomol (ditto), and ibuprofen + paracetomol (made me nauseous, indicating unsafe to continue). None of these, including the ones I stopped due to side-effects, were effective.
I'm continuing to work with my GP on finding something that works. He says it's largely trial and error and is aware of fibro pain (I don't know much about fibro and don't know if my pain is anything like it - it is only in two locations, not symmetrical, so maybe it isn't).
Is anyone aware of an expert review of inflammatory pain in ME/CFS and what works for it? I know many of us will have individually found something that works but we all have different biochemistry so rather than recommendations based on personal experience, I'm after a review written by an ME/CFS specialist with experience of treating lots of patients and who is using a rationale based on a likely viral cause for the illness to inform the order in which they try pain meds.
I'm about two months in to trying these pain meds in what seems like a pretty random order with hundreds ahead of me and so far all I've had are side-effects and no pain relief.
Hoping someone can point me to a good expert review! :sofa:
So far, I have tried mefenamic acid + paracetomol (ineffective), cocodomol + paracetomol (made me too dopey to function), naproxen + paracetomol (ditto), and ibuprofen + paracetomol (made me nauseous, indicating unsafe to continue). None of these, including the ones I stopped due to side-effects, were effective.
I'm continuing to work with my GP on finding something that works. He says it's largely trial and error and is aware of fibro pain (I don't know much about fibro and don't know if my pain is anything like it - it is only in two locations, not symmetrical, so maybe it isn't).
Is anyone aware of an expert review of inflammatory pain in ME/CFS and what works for it? I know many of us will have individually found something that works but we all have different biochemistry so rather than recommendations based on personal experience, I'm after a review written by an ME/CFS specialist with experience of treating lots of patients and who is using a rationale based on a likely viral cause for the illness to inform the order in which they try pain meds.
I'm about two months in to trying these pain meds in what seems like a pretty random order with hundreds ahead of me and so far all I've had are side-effects and no pain relief.