PACE trial commentaries in the Journal of Health Psychology to be made open access

[Jonathan Edwards]

https://twitter.com/i/web/status/850712331646627840

Not sure what "contribution" he is referring to.

I presume the Sharpe reply to Geraghty that everyone else is now responding back to. It really is pathetic that whenever the PACE people are criticised they go crying to mummy or the critic's employer or some committee or other. What they never do is answer the questions posed to them.

It appears that COPE is Coordinators of Psychiatric Education - the headmaster's study no less!! What sneaks.

 

[Solstice]

I presume the Sharpe reply to Geraghty that everyone else is now responding back to. It really is pathetic that whenever the PACE people are criticised they go crying to mummy or the critic's employer or some committee or other. What they never do is answer the questions posed to them.

It appears that COPE is Coordinators of Psychiatric Education - the headmaster's study no less!! What sneaks.

Talk about vexatious harassment...

 

[Solstice]

I am curious to that Sharpe reply though, is there anywhere on PR to find it?

 

[slysaint]

Coordinators of Psychiatric Education..........maybe they could do with some of this to cope:

VI poo

 

[lilpink]

It appears that COPE is Coordinators of Psychiatric Education - the headmaster's study no less!! What sneaks.

But really (for those who might not know) it will refer to this: https://publicationethics.org/

 

[Jonathan Edwards]

But really (for those who might not know) it will refer to this: https://publicationethics.org/

Interesting, so it's another COPE. Still the headmaster's study though.

 

[charles shepherd]

PACE trial commentary in JHP from Dr Charles Shepherd, ME Association

The MEA commentary in Journal of Health Psychology on the PACE trial methodology and results has now been published

Open access to full paper here

http://www.meassociation.org.uk/201...d-journal-of-health-psychology-10-april-2017/

PACE trial claims for recovery in myalgic encephalomyelitis/chronic fatigue syndrome – true or false? It’s time for an independent review of the methodology and results

ABSTRACT
The PACE trial set out to discover whether cognitive behaviour therapy and graded exercise therapy are safe and effective forms of treatment for myalgic encephalomyelitis/chronic fatigue syndrome.

It concluded that these interventions could even result in recovery. However, patient evidence has repeatedly found that cognitive behaviour therapy is ineffective and graded exercise therapy can make the condition worse.

The PACE trial methodology has been heavily criticised by clinicians, academics and patients. A re-analysis of the data has cast serious doubts on the recovery rates being claimed.

The trust of patients has been lost.

The medical profession must start listening to people with myalgic encephalomyelitis/chronic fatigue syndrome if trust is going to be restored.


CS

 

[trishrhymes]

Excellent article, @charles shepherd. Thank you very much.

 

[AndyPR]

Link to the commentary at The Journal of Health Psychology http://journals.sagepub.com/doi/full/10.1177/1359105317703786

 

[Barry53]

Extremely good article @charles shepherd. I especially like the way you have clearly enumerated those four important action items; pulling them all together so clearly like that is very important I think, for two reasons:-

• They are all very important, and when they are all spread out across different bits of different documents, their importance gets watered down and lost. Here you achieve the opposite.
• These four points draw into sharp focus what the major concerns are, and I suspect may prompt some to re-read your article, and maybe help motivate them to dig deeper into some of the article's references.

This really deserves/warrants wide exposure.

 

[slysaint]

This really deserves/warrants wide exposure.

Sent to half a dozen TV/radio news people...............as with everything else...........still no main media interest.
Shall keep plugging away all the same.

 

[Cheshire]

https://twitter.com/i/web/status/889773722793631744

 

[trishrhymes]

Does anyone know whether it's possible to buy the special issue without being a subscriber?

 

[lilpink]

https://twitter.com/i/web/status/889773722793631744

Will a Press Release be sent to all media outlets?

 

[lilpink]

Does anyone know whether it's possible to buy the special issue without being a subscriber?

I'd like to be able to buy this paper copy ( I'm making the assumption there is a 'paper copy'? ) as a 'one off' also.

 

[dangermouse]

I'd like to be able to buy this paper copy ( I'm making the assumption there is a 'paper copy'? ) as a 'one off' also.

I'd like to too.

 

[trishrhymes]

I've just looked up the JHP website. You can buy back issues of paper copies if in stock. I couldn't find anything about advance orders!
I've asked on twitter.
edit to add: I've just e-mailed the publishers to ask how to buy copies.

 

[Valentijn]

It looks like it's 6 euros for a print of a single issue: https://uk.sagepub.com/en-gb/eur/journal/journal-health-psychology#subscribe. But I'm not sure, because that seems too cheap, with single articles priced at 36 euros elsewhere on the site.

Based on the pop up when hitting "Info" for that option, it might be necessary to email them to arrange for a single issue.

 

[Barry53]

This is really quite something. An eminent psychology journal doing a special issue on PACE.

 

[trishrhymes]

This is really quite something. An eminent psychology journal doing a special issue on PACE.

Yes, it will be great to have gathered together in one volume all the articles about PACE we've seen them gradually publish on line over the last few months. I'm thinking of buying several copies - probably including one for my GP.