I wonder if Dr. Chia would write a letter for you or something to give to the faceless bureaucrats in charge of your housing options?? I saw him once (maybe twice, can't remember
) and he was a very nice man, seemed to really care about his patients. He wasn't able to help me, oxymatrine did nothing for me. Although inosine helped a little.
Thanks
@Mary for all you wrote in your post. Sorry oxymatrine didn't work for you and good to hear that inosine helped some. Dr. Shikhman perhaps someday. He's not far yet toooo far for me to drive and he isn't taking Medicare/MediCal now.
Also if I remember right, unless I'm mixing him up with another doctor, I don't think he does ME/CFS diagnosis. That at this point would cause me problems. Though he still may be worthwhile for dealing with all the other that we have going on and finding other things going on.
I'm debating what is the best way to proceed. I haven't seen Dr. Chia in 5 years and only once. I can't drive there nor find anyone to drive me. I was hoping oxymatrine would give me enough ability to make a follow-up appt. I called their office and they said it would be a year for an appt for me. I explained that I started oxymatrine etc yet they insisted since I hadn't seen him in so long it needs to be a comprehensive one.
I was going to write him and see what he would prescribe next, etc. Yet I think that will be futile energy wise which I need to use wisely. I'm almost positive doctors can't advice you on treatments if they haven't seen you in over a year.
I'm just wondering at this point 3.5 months into oxymatrine treatment, if it's alright to start adding other things. And what? I'm trying to read all I can about people who have seen him to see what may be the next step then I'll see if I can find another doctor will prescribe it for me (and somethings can get over the counter).
Thinking about LDN, yet still titrating up my oxymatrine with affects from that so not sure if I ought to throw that into the mix yet.
Also looking at the other antivirals, etc that he prescribed to others and see if their diagnosis also was high Coxsackie B5 and B4 and at what point they were adding treatments to oxymatrine (or Equilibrant).
Wish I could see him. Yet very thankful for everyone who has shared on the forums and in blogs. The information is so valuable. Thank you to everyone for your contributions.
