SOC
Senior Member
- Messages
- 7,849
I'm sharing our experience with this year's flu vaccine in case it can help anyone else.
First, so there's no confusion, I am generally in favor of killed virus vaccines. My daughter and I usually get flu shots, and years when we haven't, we've seriously regretted it.
We had this year's flu shot 10 days ago. Both my daughter and I have had some exacerbation of dysautonomia symptoms starting within 36 hrs.
I don't have serious dysautonomia symptoms, so all I noticed was a little additional fatigue and occasional mild tachycardia. Nothing that would concern me at all.
My daughter, however, has always had much more severe dysautonomia symptoms and was already on Florinef and extra potassium. Nevertheless, since the flue shot, she has had recurring bouts of dysautonomia that have caused her to leave class abruptly or miss class entirely -- a big deal for this kid. She's having near-syncope, OH/OI, nausea, and GI issues. She got compression socks. They're helping quite a bit, but not enough to ensure she's gets through all her classes two days in a row.
I'm not mentioning this to discourage anyone from getting a flu shot. I just want to let you all know that for us, at least, this year's flu shot seems to be having more than usual effect on our dysautonomia symptoms, so it might be wise to be prepared for that. I don't think I would have avoided the flu shot for my daughter if we had known this in advance, but we might have be better prepared so that her experience was less upsetting for her.
YMMV
First, so there's no confusion, I am generally in favor of killed virus vaccines. My daughter and I usually get flu shots, and years when we haven't, we've seriously regretted it.
We had this year's flu shot 10 days ago. Both my daughter and I have had some exacerbation of dysautonomia symptoms starting within 36 hrs.
I don't have serious dysautonomia symptoms, so all I noticed was a little additional fatigue and occasional mild tachycardia. Nothing that would concern me at all.
My daughter, however, has always had much more severe dysautonomia symptoms and was already on Florinef and extra potassium. Nevertheless, since the flue shot, she has had recurring bouts of dysautonomia that have caused her to leave class abruptly or miss class entirely -- a big deal for this kid. She's having near-syncope, OH/OI, nausea, and GI issues. She got compression socks. They're helping quite a bit, but not enough to ensure she's gets through all her classes two days in a row.
I'm not mentioning this to discourage anyone from getting a flu shot. I just want to let you all know that for us, at least, this year's flu shot seems to be having more than usual effect on our dysautonomia symptoms, so it might be wise to be prepared for that. I don't think I would have avoided the flu shot for my daughter if we had known this in advance, but we might have be better prepared so that her experience was less upsetting for her.
YMMV