OT: [London 21/5/14] Evening of Evidence: CFS Management and treatment in Adolescents

[Esther12]

http://www.rcpch.ac.uk/events/eveni...syndrome-management-and-treatment-adolescents

Date: 21 May 2014
Time: 5.30 - 8.00
Location:
RCPCH, London
Spaces available

Fee
RCPCH Members: £15
Non-members: £20
Book now
Overview
Chronic Fatigue Syndrome (CFS/ME) affects 50 to 100 per 100,000 children, with a higher rate in adolescence. UK prevalence in children up to the age of 18 years is estimated at 2%. For young people with CFS/ME, this means being unable to attend fulltime school, or take part fully in usual activities including socialising with their peer group.

This Evening of Evidence outlines how to diagnose CFS/ME, and explores a variety of interventions and rehabilitative approaches used for the management and treatment of CFS/ME, including Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET) (recommended by NICE, 2007, PACE, 2011).



Objectives & learning outcomes
Participants will be able to:

• Diagnose CFS/ME through evidence outlined during the evening
• Consider the impact that CFS/ME has on adolescents in terms of education and socialising
• Utilise in their practice, a variety of interventions and rehabilitative approaches used for the management and treatment of CFS/ME.

Audience
Trainees, consultants, SAS doctors, consultants, nurses, AHPs as well as other professionals with an interest in the subject area.

As it's adolescents, I wonder if they'll have more quackery from Crawley along the lines of her claim that PACE showed 30-40% recovered with CBT and GET. I couldn't see who was speaking, but we can be pretty confident that it's someone happy to hype CBT and GET rather than really look critically and honestly at the evidence.

 

[Valentijn]

As it's adolescents, I wonder if they'll have more quackery from Crawley along the lines of her claim that PACE showed 30-40% recovered with CBT and GET. I couldn't see who was speaking, but we can be pretty confident that it's someone happy to hype CBT and GET rather than really look critically and honestly at the evidence.

Someone could go to find out

 

[Esther12]

Not sure if this was online previously:

Resources for this course
NICE quick reference guide - Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children (PDF)

Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial (PDF)

The PACE paper is still uncorrected for the bullshit claim that an SF-36 PF score of 60 is the mean minus 1 sd for the UK working age population.

This range was defined as
less than the mean plus 1 SD scores of adult attendees
to UK general practice of 14·2 (+4·6) for fatigue (score
of 18 or less) and equal to or above the mean minus 1 SD
scores of the UK working age population of 84 (–24) for
physical function (score of 60 or more)

So patients are still being classed as 'back to normal' even when they report lower levels of physical functioning than was required for them to be classed as having severe and disabling fatigue at the start of the trial.

Would be nice if someone there did ask about the refusal to release the PACE outcome measures in the manner laid out in the trial's protocol, and the inaccurate claims made to justify deviation from the protocol:

https://www.whatdotheyknow.com/request/pace_trial_recovery_rates_and_po

 

[Esther12]

Also, the programme is online but doesn't reveal much: http://www.rcpch.ac.uk/system/files/protected/course/Chronic Fatigue Syndrome EofE programme.pdf