I'm asking my ME specialist next time I see him if I can have a tilt-table test or something to see whether I have Orthostatic Intolerance. It's great to see that if I do, it's treatable and would hopefully improve my general ME!
Not so fast Elliott, lol,
This would be great but ... If you go to the DINET (dysautonomia / OI / POTS) board and take a look around you'll find some who've improved but that's all. Their treatments vary from taking the meds recommended by their dysautonomia docs to salt loading to taking allergy meds to changing their diets to excercise to using compression garments.
You can do your own poor man's tilt table test. Better yet, have someone help you ... Just lay down for an hour and take your BP while laying still. Then stand up for 2 minutes and take it again. Don't talk or move ... If you don't notice a drop of 20 pts then take it again at 5 minutes ... I've heard too though that some people's BP doesn't drop until they've been upright for 15 ...
BTW. I have OI but I can handle hot showers and getting over heated now. I don't get dizzy anymore either. These all cleared up one year after getting the gluten out of my diet. We're all different ...
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