Opinions on de Meirlier
- Thread starter neweimear
- Start date
I don't visit this forum very often. I'm here for the science. Because I'm interested in the research coming from the Stanford group and because I appreciate prof Edward's contributions. I think they are all doing an amazing job and I hope their discoveries will also help Lyme patients in the future.
I had no idea how to send my thoughts about KDM as a personal message and found out later it was called a 'conversation' here. When I found out how to start a private conversation I contacted Janet Dafoe. I have also offered to remove my post from the public part of the forum if she thought it was harmful in any way. She said it was fine.
I will offer the same to all other members. If you think my post is harmful or if it is hurtful to you personally please say so and I will remove it.
I do however stand by my opinion, which is not based on hearsay but on facts.
I had no idea how to send my thoughts about KDM as a personal message and found out later it was called a 'conversation' here. When I found out how to start a private conversation I contacted Janet Dafoe. I have also offered to remove my post from the public part of the forum if she thought it was harmful in any way. She said it was fine.
I will offer the same to all other members. If you think my post is harmful or if it is hurtful to you personally please say so and I will remove it.
I do however stand by my opinion, which is not based on hearsay but on facts.
Could you send it to me please? Since I am a patient of his, anything that serious would surely be of interest to me.
Edit: Ah, I have just reread your post. If you are uncomfortable sending it to me, don´t worry about it, but to my mind it isn´t really fair to make allegations about someone in a public forum without providing any evidence.
Edit: Ah, I have just reread your post. If you are uncomfortable sending it to me, don´t worry about it, but to my mind it isn´t really fair to make allegations about someone in a public forum without providing any evidence.
I have no problem with your post @Vassie
To be fair I just don't see the point. I think Ron Davis knows KDM well enough to see his qualities and his flaws (and the same applies to KDM towards Ron Davis). But if you think it's helpful to remind Ron Davis about this, it's up to you
To be fair I just don't see the point. I think Ron Davis knows KDM well enough to see his qualities and his flaws (and the same applies to KDM towards Ron Davis). But if you think it's helpful to remind Ron Davis about this, it's up to you
You are right that experimental treatment on a large number of patients is not allowed in some countries. Finnish CFS/ME expert Olli Polo, who was a well respected professor and sleep researcher, recently lost his private practice license due to the same issue. But prescribing a medication like for example LDN "off-label" in individual cases is perfectly allowable. I know it is in Norway as well, because apparently 70% of the general practitioners there now prescribe LDN after a TV documentary about how LDN has helped Norwegian MS patients came out. In some diseases there is no guideline for how to treat patients, but an off-label treatment may help to treat an aspect of the disease. Lyrica/Pregabalin is another common drug that is prescribed "off-label" for condition X to condition Y, and nobody seems to care about that.
Really sorry to see @msf, a member I really respect, behaving so poorly on this thread. It does not do you any credit. You have not only taken an aggressive tone, but have actually levelled direct insults to members (the one about Marky90 being too incapable to win his cases). Not good, I understand emotions are high, but that's the very situation where we need to be most careful.
Correcting the spelling on a non-native English speaker to score points on them is not nice.
There's a lull in moderation here, so the inappropriate threads can't be reported. So thought I should at least speak up for anyone who has been offended by the inappropriate tone here.
Correcting the spelling on a non-native English speaker to score points on them is not nice.
There's a lull in moderation here, so the inappropriate threads can't be reported. So thought I should at least speak up for anyone who has been offended by the inappropriate tone here.
@Mark can we please move this thread to members only as it is discussing a practicing doctor?
Also, if each member would kindly moderate him- or her- self, we need self-governance now more than ever. Also it is always a good bet to speak to others in a way that you yourself would like to be spoken to.
ETA: @Marky90, we do not slander doctors here at PR, especially when we have formed negative opinions without even having met them. A thread like this recently got out of hand and got a very fine doctor sanctioned by the state. Please remember our words can travel far, out of context, and have real-life consequences. Thank you.
Also, if each member would kindly moderate him- or her- self, we need self-governance now more than ever. Also it is always a good bet to speak to others in a way that you yourself would like to be spoken to.
ETA: @Marky90, we do not slander doctors here at PR, especially when we have formed negative opinions without even having met them. A thread like this recently got out of hand and got a very fine doctor sanctioned by the state. Please remember our words can travel far, out of context, and have real-life consequences. Thank you.
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Well, you have failed to do that, since many people were offended by the tone of Marky90 as well (I guess you just missed him calling me pathetic and a troll). As I explained above, I wouldn´t normally correct someone´s English, but if they repeatedly use a slanderous term wrong, what else am I supposed to do? I guess I could just have ignored it, but people get away with unsubstantiated allegations on threads all the time, and to make those people immune from criticism does not help those with ME.
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Yes, you are right, Marky90's tone was not great. I didn't see where he called you pathetic and a troll, and I'm sorry if I overlooked that and treated you unfairly.
It would have been better for me to talk generally, and not single you out, @msf. I apologise.
But while there are no moderators, can we all just remember no personal attacks and try to manage our tone to avoid angering people in the first place?
It would have been better for me to talk generally, and not single you out, @msf. I apologise.
But while there are no moderators, can we all just remember no personal attacks and try to manage our tone to avoid angering people in the first place?
Well I was not the one who started getting personal, I usually give the same tone back in real life.
And Leela - I rather not be silenced, although that could be your personal wish. If I, based on my analysis, thinks KDM is a crook; then i am perfectly allowed to say so. It is simply a personal opinion, this discussion is getting way blown up.
And Leela - I rather not be silenced, although that could be your personal wish. If I, based on my analysis, thinks KDM is a crook; then i am perfectly allowed to say so. It is simply a personal opinion, this discussion is getting way blown up.
I still haven`t seen any data to support his claims being linked, which is why I think hes dishonest, which again by definition could make him a crook. There was no need to initiate english lessons to a stranger
And if you said you think he is dishonest and he could be a crook, then I wouldn´t have done so.
Edit: I see that you said that you 'think he is a total crook' so perhaps I should have focused more on the fact that you can think what you like, but without any evidence it is just another opinion. Well, we have already bored 99% of the people reading this thread, so I will stop here.
Edit: I see that you said that you 'think he is a total crook' so perhaps I should have focused more on the fact that you can think what you like, but without any evidence it is just another opinion. Well, we have already bored 99% of the people reading this thread, so I will stop here.
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I am still interested in hearing the comments of KDM supporters on how they explain the discrepancy between almost every patient of KDM being diagnosed with one or more infections, and research consistently showing a low prevalence of infections in ME/CFS.
The nice thing about jackasses is that it usually isn't necessary for anyone else to reveal that they are a jackass. They do an excellent job of that on their own, which is indeed in the nature of jackasses.
And yelling at a jackass certainly isn't going to accomplish anything. I recommend patting it on the head and shoving a carrot in its mouth if it starts braying uncontrollably
And yelling at a jackass certainly isn't going to accomplish anything. I recommend patting it on the head and shoving a carrot in its mouth if it starts braying uncontrollably
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Is there a need for patients to explain any discrepancy? I see KDM because he helps manage my symptoms and is willing to try sensible treatments.
I don't think it's fair to put the same demands upon someone acting in a clinical capacity as you would upon someone acting in a research capacity. KDM does do research, but as a clinician he treats patients as individuals. I don't know if "almost every patient" is diagnosed with an infection, but it isn't relevant to my treatment anyhow.
And perhaps infections are more likely to be present in ME patients, due to some inability to clear them in general. Any particular infection might not be more prevalent in ME patients (especially without a huge research sample), so they certainly could be right about no specific infection being an underlying cause of ME.
But as I said - it doesn't matter. The original question was in regards to KDM as a clinician, not as a researcher.
I don't think it's fair to put the same demands upon someone acting in a clinical capacity as you would upon someone acting in a research capacity. KDM does do research, but as a clinician he treats patients as individuals. I don't know if "almost every patient" is diagnosed with an infection, but it isn't relevant to my treatment anyhow.
And perhaps infections are more likely to be present in ME patients, due to some inability to clear them in general. Any particular infection might not be more prevalent in ME patients (especially without a huge research sample), so they certainly could be right about no specific infection being an underlying cause of ME.
But as I said - it doesn't matter. The original question was in regards to KDM as a clinician, not as a researcher.
The nice thing about jackasses is that it usually isn't necessary for anyone else to reveal that they are a jackass. They do an excellent job of that on their own, which is indeed in the nature of jackasses.
And yelling at a jackass certainly isn't going to accomplish anything. I recommend patting it on the head and shoving a carrot in its mouth if it starts braying uncontrollably
And yelling at a jackass certainly isn't going to accomplish anything. I recommend patting it on the head and shoving a carrot in its mouth if it starts braying uncontrollably