Officially diagnosed with Autoimmune Encephalitis

crypt0cu1t

IG: @crypt0cu1t
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I just had a great consult with a very well known rheumatologist who looked over my records and agreed that I do have autoimmune Encephalitis.

I'll soon be starting SCIG, Cellcept & rituximab as soon as I have a complete cancer workup to rule out malignancies.

I'm really hoping that this time I get the right treatment and get my life back.
 

crypt0cu1t

IG: @crypt0cu1t
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May I asked what lab markers and clinic led your doctor to diagnose you with autoimmune encephalitis? Do you have specific auto-antibodies?

I really hope that this treatment works for you! Wishing you the best luck!

Sergio
Yes, I have AChR Binding antibodies, AChR Ganglionic Antibodies, high ESR, high CRP, abnormal EEG and a very abnormal PET Scan.
 

Zebra

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Hi, @crypt0cu1t

I really appreciate you sharing your story, and I especially appreciate that you shared the testing and findings that led to your diagnosis. That is hugely helpful to those who may follow in your footsteps, be it now, or in the future.

I wish you a very successful treatment and recovery!
 

crypt0cu1t

IG: @crypt0cu1t
Messages
593
Likes
1,592
Location
California
Hi, @crypt0cu1t

I really appreciate you sharing your story, and I especially appreciate that you shared the testing and findings that led to your diagnosis. That is hugely helpful to those who may follow in your footsteps, be it now, or in the future.

I wish you a very successful treatment and recovery!
Thank you so much for the kind words, I will be updating everyone here on my journey as much as possible!