Nuerology Visit

[Davsey27]

Hello everyone i have an appointment With a nuerologist tommorow that I scheduled.I was curious what tests to ask for regarding CFS/ME?

I have already done a brain Mri which came back normal looking for MS and was told cerebal spinal fluid is.not
necessary. Also requested an Ecg of The brain while playing a youtube video On my cell phone to get some documents For my electromagnetic sensitivity looking for abnormal brain waves.

Nuerologist said this isnt necessary And the only nuero test i have so far is a brain Mri which showed no lesions

I sometimes wake up wired with electric Sensations and this didnt happen when I left Atlanta a few weeks ago to louisville,kentucky and felt better there. I was also taking Cymbalta 30 mg perscribed by the nuerologist.And 0.5 Mg tid of Klonopin by a psychiatrist I think the Cymbalta may have helped some. Only concern is that if i go to Ethiopia to live in a more natural environment i would be out of it.p

My father ordered me Ldn from buypharma to try and help.

My health insurance will be up soon as Im unable to currently work

Thank You

 

[Timaca]

I've seen several neurologists and they really didn't come up with anything for me. All their tests came back normal. I have a LOT of neurological symptoms including burning sparking crawling nerves all over my body. They don't know why I have the symptoms I do.

The last one I saw was at least 8 years ago. Maybe they have better insights now than when I saw them.

Good luck, even if they don't know why you have your symptoms, they can at least rule out other illnesses (like they did with MS for you).

Best,

 

[MEPatient345]

If you can find someone to do a quantitative EEG (qEEG), that will show some abnormalities. I did this for disability benefits reasons. It didn’t help me with treatment.
Most neurologists won’t have qEEG capabilities and software. You may have to find a specialist brain training center that deals with teens w adhd. Or a university. Mine was done by a neuroscientist who was also a psychologist.

 

[Davsey27]

Thanks for the feedback.Any med or
testing would be appreciated

I see you guys have been
Thru alot.I do get the crawling nerve sensations.waking up.300mg gabapentin seemed to help with the electric sensations in the body.It was my last pill.
Seems to quelm some of the electric activity

Not sure if he is willing to rx it.
I usually take Klonopin.Its strange with
This condition i can feel the new nerve
Fields in different places as if the
has emerged into new fields.The awareness almost feels like the brain
and soul is this new field.I can feel
Electric circuits in my brain wiring
when i wake up.

Perhaps thisIs the boundary between ME and Fibromylgia.There are times when i am in the woods this isn’t the cases and i
get some glimpses of my old body before
all of this.Thank you everyone

 

[judyinthesky]

I've seen several neurologists and they really didn't come up with anything for me. All their tests came back normal. I have a LOT of neurological symptoms including burning sparking crawling nerves all over my body. They don't know why I have the symptoms I do.

The last one I saw was at least 8 years ago. Maybe they have better insights now than when I saw them.

Good luck, even if they don't know why you have your symptoms, they can at least rule out other illnesses (like they did with MS for you).

Best,

It's been a while but I was wondering what your background of the crawling nerves would be and whether you found a treatment?
I'm having them awfully as well.

 

[Timaca]

It's been a while but I was wondering what your background of the crawling nerves would be and whether you found a treatment?
I'm having them awfully as well.

I'm sorry you are having burning nerves. I still have burning, sparking crawling nerves all over my body, but the burning part is much less. It's more crawling, sparking nerves now...and if they burn it isn't really painful. I just live with it. I guess I'm used to it now.
I hope you find something that helps.