(Hansard Link below) Caroline Dinenage, Department of Health and Social Care, sidesteps the question around the lack of cfs/me research in uk. Funding for research is allocated according to assessment by peer review. For "peer" read doctors in the highest levels of academic research and political influence. Royal College presidents, psychocult industry representatives and anyone else invested in maintaining the status quo of reinforcing the idea that cfs/me is a result of a choice or dysfunctional thought in the sufferers own minds. Government determined allocation of research funding is in effect being defrauded. Even with the evidence of the fraud of the PACE trial the government refused to take any action, such as having the researchers investigated and face appropriate sanction, e.g.at the very least prohibiting them from further government funded research in the future. Instead, I would not be surprised if these researchers are some of the very "peers" that the Minister refers to.
The lack of action by successive UK governments on this is worrying. It is worrying of course because the potential to find a diagnostic and treatable cause of this suffering relies on overseas efforts and on private charitable donations in the UK. More importantly I think, it leaves the UK government open to accusations of complicity in the fraud, the covering up and camouflaging the fraud and the deliberate delay in identifying treatments and relief of suffering. Like the scandal of the blood products contamination, sufferers, and their survivors, my well have grounds for a class action litigation.
The irony that the cause of cfs/me may be simpler than we ever thought and the treatment/cure incredibly cheap while millions have been spent manufacturing a false concept of illness that locks its sufferers into social security benefit dependency while creating an industry of unhelpful or damaging therapy, while draining resources from mental health services at the same time, is a disgrace of incompetent governance.
https://www.parliament.uk/business/...s/written-question/Commons/2018-09-04/170278/
The lack of action by successive UK governments on this is worrying. It is worrying of course because the potential to find a diagnostic and treatable cause of this suffering relies on overseas efforts and on private charitable donations in the UK. More importantly I think, it leaves the UK government open to accusations of complicity in the fraud, the covering up and camouflaging the fraud and the deliberate delay in identifying treatments and relief of suffering. Like the scandal of the blood products contamination, sufferers, and their survivors, my well have grounds for a class action litigation.
The irony that the cause of cfs/me may be simpler than we ever thought and the treatment/cure incredibly cheap while millions have been spent manufacturing a false concept of illness that locks its sufferers into social security benefit dependency while creating an industry of unhelpful or damaging therapy, while draining resources from mental health services at the same time, is a disgrace of incompetent governance.
https://www.parliament.uk/business/...s/written-question/Commons/2018-09-04/170278/
