News Report on Blood Ban & CFS...

dannybex

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Not sure if this has been posted, but wanted to let people know that our Seattle tv news station just ran a story on the local blood banks decision to ban CFS patients from donating blood:

http://www.king5.com/health/Blood-C...from-Chronic-Fatigue-Sufferers-111698789.html

I hope you'll please take a moment to thank the reporter and the station for running the story. Any news relating to CFS/ME is good news. This station is really great, but I'm still in shock that it actually ran, and it ran near the top of the newcast. :)

NEWSFLASH: It was just picked up by MSNBC:

http://today.msnbc.msn.com/id/40613..._wa/?fb_ref=story_text&fb_source=home_oneline
 

Sasha

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Not sure if this has been posted, but wanted to let people know that our Seattle tv news station just ran a story on the local blood banks decision to ban CFS patients from donating blood:

http://www.king5.com/health/Blood-C...from-Chronic-Fatigue-Sufferers-111698789.html

I hope you'll please take a moment to thank the reporter and the station for running the story. Any news relating to CFS/ME is good news. This station is really great, but I'm still in shock that it actually ran, and it ran near the top of the newcast. :)
I recommend we all click on the links so these media sites see they get traffic if they cover this kind of story. It's an indication to them to keep going.

There are some great comments on there already. Here's one:

Omg. HALTS donations?! How long has this been in the blood supply? This is really freaky! I did a search on google and they're saying it causes all kinds of weird big diseases - and they say its called "XXMRV Associated Neuroimmune Disease." that's like HIV right? And a bigger question - if the U.S./Europe is already reporting that it's worried about the blood supply, why arn't other major networks covering the story? This is the first I had heard of it on a television network! I am really freaked out!
 

talkingfox

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Hi. that's me on the story.
A few points of interest that WEREn't highlighted:

The Guy from PSBB is the next prez. of teh AABB
Their policy of BANNING donations from CFS patients wasn't implemented until AFTER talking to the reporters.
As of Monday the week the story ran, the PSBB support staff hadn't even HEARD of XMRV (we have a paper trail on that one)

What this proves is that local action can make a difference in policy. No one in a position of authority likes to be put under the spotlight like that...

Have you talked to your regional /local bloodbank today? If you e-mail , keep copies of everything. It could be useful :)
 

Sasha

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Hi. that's me on the story.
Congratulations! You were great - some really good quotes there. I was really impressed by how seriously they were taking it in the broadcast.

We should email and thank the producer (?) Tonya Mosley: tmosley[at]king5.com. I just sent a short email thanking her.

When we did this before on a Nevada radio station show about XMRV, they did indeed cover it again because of the huge response. It's well worth doing.