Here is the new video by the makers of Voices from the Shadows. It includes several familiar faces and also Dr WIlly Weir, Dr Nigel Speight and Dr Charles Shephard. It is excellent as always and makes a good educational tool.
Dialogues for a neglected illness – or Dialogues for ME/CFS is a new project being made with an award from the Wellcome Public Engagement Fund. More information here. The project will consist of a website with a collection of about a dozen new short videos, accompanied by links to existing educational and reference material. It will create a vivid, multi-faceted picture of ME/CFS, covering different aspects of the disease from a variety of perspectives, which will include – diagnosis; various management and treatment issues; Severe ME and the support doctors can provide; key symptoms described by patients in their own words –short and long term experiences and differing severities; patient advocates’ concerns; and the broader historical, social, medical and cultural context for the disease. It will create a resource which patients can use to help their doctors and other health, education and research professionals understand more about this disease and the issues faced.