New subreddit r/CFSScience

[forestglip]

I was approved to be moderator of the formerly abandoned subreddit /r/CFSScience. The only place I could find with substantial discussion on Reddit about the science of CFS are currently the main CFS subreddits, but those posts are only a small fraction of total posts and get buried quickly. So I hope to make this subreddit a good place for any discussion relating to the research and science of CFS and Long COVID.

 

[Rufous McKinney]

Thanks for doing that!!

I am not very familiar with Reddit. do you have to formally join to access the info?

 

[forestglip]

Thanks for doing that!!

I am not very familiar with Reddit. do you have to formally join to access the info?

You don't have to have an account to look at posts and comments, you can just go to that link. To make posts and comments, you'd need to make a Reddit account (very quick). The Join button is basically just if you want new posts from this subreddit to appear on your Reddit homepage.

 

[wabi-sabi]

It will be good to see some quality stuff on reddit.

 

[Murph]

Nice. it's the destinty of any sufficiently large subreddit to be swamped by memes and low-value content. it is always valuable to create new small subreddits for smart motivated people to use.

I was on r/cfs back when it had 1500 users. There was a tiny group of us there. Now it has 44,000 and I barely use it.

 

[wabi-sabi]

it's the destinty of any sufficiently large subreddit to be swamped by memes and low-value content

I use to read r/daystrom a lot. It 's a star trek reddit. The mods kept away all memes and low-value stuff. I don't know how they did it, but it worked. It's not moderated anymore that I can tell and it's gone greatly down hill, but it used to be an interesting place.

 

[Wishful]

I find Reddit painfully slow to load pages from, so I avoid it. It's text, so why the long load times?

 

[forestglip]

I find Reddit painfully slow to load pages from, so I avoid it. It's text, so why the long load times?

Hmm, usually it's pretty fast for me. But if it is slow, I'd say it's less about the amount of data it's sending you, and more that it's a huge, complicated website with millions of simultaneous users downloading data at the same time and billions of posts/comments to manage.

 

[Wishful]

If the slowness was due to the usage, we'd experience the same speed. I have a slow rural internet connection and a slow computer (Raspberry Pi 3), so I notice if a page requires a lot of data transfer or data processing just to load a simple text comment. I hate when people include tweets, because again, it's really, really, really slow just for a short bit of text; either it's sending a lot of extraneous data or it requires a lot of extraneous processing to display simple text. I think comments appeared onscreen faster when I was using a 1200 bps modem.

 

[forestglip]

If the slowness was due to the usage, we'd experience the same speed. I have a slow rural internet connection and a slow computer (Raspberry Pi 3), so I notice if a page requires a lot of data transfer or data processing just to load a simple text comment. I hate when people include tweets, because again, it's really, really, really slow just for a short bit of text; either it's sending a lot of extraneous data or it requires a lot of extraneous processing to display simple text. I think comments appeared onscreen faster when I was using a 1200 bps modem.

You could try using the old version of Reddit, it might be faster. You just replace reddit.com with old.reddit.com: https://old.reddit.com/r/CFSScience/

 

[Osaca]

The sub appears to already have gotten the attention of none other than the harmful u/swartz1983, whom @Hip has commented on https://forums.phoenixrising.me/thr...ou-say-something-about-it.90736/#post-2442833. A research oriented sub will probably require some moderation to not become pure pseudoscientific trash like those subs already managed by swartz1983.

 

[forestglip]

The sub appears to already have gotten the attention of none other than the harmful u/swartz1983, whom @Hip has commented on https://forums.phoenixrising.me/thr...ou-say-something-about-it.90736/#post-2442833. A research oriented sub will probably require some moderation to not become pure pseudoscientific trash like those subs already managed by swartz1983.

Interesting, I wasn't aware. The two posts he made seem to be about potential physical causes of Long COVID and don't seem harmful to the community. I'll monitor, and might set some rules if issues arise.

 

[Osaca]

Interesting, I wasn't aware. The two posts he made seem to be about potential physical causes of Long COVID and don't seem harmful to the community. I'll monitor, and might set some rules if issues arise.

I wouldn't visit any sub that engages in harmful recommendations that contradict all available scientific evidence. His one post is about the BPS model, whilst the other post indeed is a decent paper which however recommends graded exercise therapy as a treatment, several researchers have decided to write a response to this paper. Personally if I was to visit a subreddit and the first thing I would see would be posts by swartz1983 I'd probably automatically assume it's one of the several subreddits he is running, similar to how I'd have little interesting in a conference headlined by the names Garner, White, Wesseley, Knoop and Rosmalen.

 

[forestglip]

the other post indeed is a decent paper which however recommends graded exercise therapy as a treatment, several researchers have decided to write a response to this paper.

Do you have a link to that response by any chance?

 

[Osaca]

Do you have a link to that response by any chance?

The paper just came out.

Some researchers have decided to write a response (letter to the editor) addressing the obvious mistakes in the paper surrounding the GET claims (see for example the discussion here www.twitter.com/tjalcovrv/status/1742183169430888603 or here with one of the people that seems to be part of those people drafting a response www.twitter.com/FvRhijn/status/1742240786819711015. I believe to remember, but could be misremembering, Putrino and possibly Todd Davenport, were also part of the people writing a response).

 

[forestglip]

The paper just came out.

Some researchers have decided to write a response (letter to the editor) addressing the obvious mistakes in the paper surrounding the GET claims (see for example the discussion here www.twitter.com/tjalcovrv/status/1742183169430888603 or here with one of the people that seems to be part of those people drafting a response www.twitter.com/FvRhijn/status/1742240786819711015. I believe to remember, but could be misremembering, Putrino and possibly Todd Davenport, were also part of the people writing a response).

Thanks, I'll keep an eye on his Twitter and add his response as a comment to that post once they release it.

 

[Wishful]

Thank you, @forestglip , oldreddit is decently fast. I've been avoiding reddit for years, due to the slowness, but I'll have to start exploring again through oldreddit.

 

[JasonPerth]

Nice. it's the destinty of any sufficiently large subreddit to be swamped by memes and low-value content. it is always valuable to create new small subreddits for smart motivated people to use.

I was on r/cfs back when it had 1500 users. There was a tiny group of us there. Now it has 44,000 and I barely use it.

I got banned on r/cfs just for calling out the moderator we are all aware of on r/cfsme and r/mecfs for promoting pseudoscience