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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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New: PACE trial video series

Spindrome

Spindrome

Messages
41
The PACE trial - Part 1: Moving the goalposts.

The authors had a strict plan which they changed after the trial had started. An MP and experts discuss the fundamental problems with these changes.


New Video: The PACE Trial: Part 2: Harm

Patients, experts and MPs discuss the harm associated with the PACE trial and behavioural treatments for ME. Over 50% of ME patients consistently report that Graded Exercise makes them worse.

 
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