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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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NEW IOM Study: "countless patients harmed by wrong diagnoses"

JamBob

Senior Member
Messages
191
Wish I could say I was shocked.
Their trained that way.

I've had quite a few misdiagnoses and I still struggle with how to cope with being misdiagnosed as I think that misdiagnoses can cause all kinds of harms.

On the one hand, I feel very angry but on the other hand I feel like doctors are only human, they make human mistakes and they are badly trained in the first place so it's not really their fault. If I were them, I'd probably make mistakes too.

The most upsetting diagnoses for me arise from sexist or other prejudiced biases that lead doctors to make false assumptions about me as a patient. I don't like it when I am misdiagnosed due to assumptions about my gender - that really pisses me off.
 

Mary

Moderator Resource
Messages
17,365
Location
Southern California
I've had quite a few misdiagnoses and I still struggle with how to cope with being misdiagnosed as I think that misdiagnoses can cause all kinds of harms.

I understand doctors are only human - but - too many don't seem to realize that and get offended if someone questions their judgment. I think the biggest problem we CFS/ME patients encounter (besides ignorance) is a refusal to listen to us. Since we don't fit into a simple diagnostic box, we must be nuts, it's all in our heads and so on. I don't think doctors are trained to listen to patients, and that can lead to sexist and other biases as you say. It's crazy.