Please, try to stay on topic! 

All projects need a clear place to meet and organize and for Project ENOUGH!!! this will take place on the good science forum. http://www.mecfsforums.com/index.php Of course, once team membership grows a bit and the projects are a bit more evolved, team members are welcome to reach out to other forums as I have done here.
What is Project ENOUGH!!! ?
- Project ENOUGH!!! Involves investments of time and energy, not money.
- We fully understand that most participants are sick and may not have much energy to give. ALL contribuitions, large and microscopic are welcome and useful. Penny jars do eventually gather enough money to do something useful.
- Project ENOUGH!!! Is being coordinated by me, but is not "my" project. It is simply an umbrella project aimed at focusing the energies of PWME around the clear but general goal of ensuring that good science moves forward.
- The project is made up of teams. Currently there are 5. More could certainly be suggested if there is a hole in the outline I have proposed.
- Team 1 is concerned with making sure that the information available to patients and doctors is accurate, and is corrected if it is not.
- Team 2 is concerned with making sure the media is aware of the complete story of CFS and the need to cover it. A timeline of bullet points that can be sent with letters is already nearing completion.
- Team 3 is designing and organizing public awareness campaigns. Their current focus is the urgent need for accurate testing and screening of the blood supply, and preliminary research clarifying exactly which and how many diseases XMRV is implicated in. Peer reviewed papers now show that the prevalence of XMRV in the healthy population is somewhere between 2 and 4, possibly even 7%. People need to know about this.
- Team 4 is building alliances with other patient groups for diseases in which XMRV might be implicated, or, for diseases that have been similarly marginalized or neglected by research. There is a thread with more information on this here. http://www.forums.aboutmecfs.org/sho...eases-outreach This team in particular badly needs volunteers.
- Team 5 is preparing rebuttals for scientific journals, along the lines of what they already did in Retrovirology. From now on, the hope is that ALL papers published on the topic of ME/CFS have our stamp of approval or disapproval, backed up by extremely solid scientific analysis. No more BS.
All projects need a clear place to meet and organize and for Project ENOUGH!!! this will take place on the good science forum. http://www.mecfsforums.com/index.php Of course, once team membership grows a bit and the projects are a bit more evolved, team members are welcome to reach out to other forums as I have done here.
What is Project ENOUGH!!! ?
- Project ENOUGH!!! Involves investments of time and energy, not money.
- We fully understand that most participants are sick and may not have much energy to give. ALL contribuitions, large and microscopic are welcome and useful. Penny jars do eventually gather enough money to do something useful.
- Project ENOUGH!!! Is being coordinated by me, but is not "my" project. It is simply an umbrella project aimed at focusing the energies of PWME around the clear but general goal of ensuring that good science moves forward.
- The project is made up of teams. Currently there are 5. More could certainly be suggested if there is a hole in the outline I have proposed.
- Team 1 is concerned with making sure that the information available to patients and doctors is accurate, and is corrected if it is not.
- Team 2 is concerned with making sure the media is aware of the complete story of CFS and the need to cover it. A timeline of bullet points that can be sent with letters is already nearing completion.
- Team 3 is designing and organizing public awareness campaigns. Their current focus is the urgent need for accurate testing and screening of the blood supply, and preliminary research clarifying exactly which and how many diseases XMRV is implicated in. Peer reviewed papers now show that the prevalence of XMRV in the healthy population is somewhere between 2 and 4, possibly even 7%. People need to know about this.
- Team 4 is building alliances with other patient groups for diseases in which XMRV might be implicated, or, for diseases that have been similarly marginalized or neglected by research. There is a thread with more information on this here. http://www.forums.aboutmecfs.org/sho...eases-outreach This team in particular badly needs volunteers.
- Team 5 is preparing rebuttals for scientific journals, along the lines of what they already did in Retrovirology. From now on, the hope is that ALL papers published on the topic of ME/CFS have our stamp of approval or disapproval, backed up by extremely solid scientific analysis. No more BS.