• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

New ILADS treatment guidelines for persistent lyme

duncan

Senior Member
Messages
2,240
I find the ILADS organization often times puzzling.

Take their new Guidelines. A lot of people have been waiting a long time for them. They finally come out, and arguably the biggest news is the format. And the focus they put on the EM? Well, the only thing as perplexing is the IDSA did the same friggen thing.

ILADS offers an essential counter to what many believe are egregious flaws in the IDSA Guidelines. But I swear they could use some help in marketing circles. I'm beginning to think the best strategy ILADS may wish to consider is letting the IDSA spout and preach suspect theories, and let the IDSA recommend old diagnostics, and insult very sick patients, and alienate entire counties of Lyme patients all on their own. :)

But some one has to stand up to the IDSA and CDC and NIH, and thank God ILADS is trying.
 
Last edited:
Back