New document on the 'grey' literature on ME by Margaret Williams: the evidence ignored by those reframing ME as psychiatric.

[Countrygirl]

Hot off the Press!​

This is a long and important document on the 'grey' literature i.e. the reports from medical conferences on ME at the time that Wessely and his colleagues were re-framing ME as psychiatric.

You will see that a great deal was either suspected or known about the pathology by 1995, and that there has been little progress since the mid '90s on account of the Wessely School closing down biomedical research and diverting the limited research funds to their coffers.

A new Kumar and Clark standard medical textbook for doctors and medical students has been published during the last week, and ME has been placed under psychiatry. Doctors are recommended to read the PACE trial, are informed that ME is at least partly psychiatric, that it should be treated with 'active rehabilitation' (a new term for GET) and CBT. The textbook therefore ignores and undermines the NICE guidelines and irresponsibly advises doctors to inflict harmful treatment on patients. It is inferred from the text that lack of recovery in the patient is the result of their failure to co-operate with psychiatric treatment. This document quotes from the textbook in the last section.

 

[southwestforests]

A new Kumar and Clark standard medical textbook for doctors and medical students has been published during the last week, and ME has been placed under psychiatry. Doctors are recommended to read the PACE trial, are informed that ME is at least partly psychiatric, that it should be treated with 'active rehabilitation' (a new term for GET) and CBT. The textbook therefore ignores and undermines the NICE guidelines and irresponsibly advises doctors to inflict harmful treatment on patients. It is inferred from the text that lack of recovery in the patient is the result of their failure to co-operate with psychiatric treatment. This document quotes from the textbook in the last section.

Seriously?

How does THAT happen in this 21st century age of science?
Oh ...
Wait ...
I forgot ...
Medicine isn't a science, it's a religion.
/s


Here,
as an added bonus at no extra charge, from the American Academy of Arts and Sciences,
https://www.amacad.org/daedalus/science-21st-century

From the invention of new life forms to the discovery of life beyond Earth, science is reshaping our understanding of the universe in the twenty-first century. In the Summer 2012 issue of Dædalus, leading scientists describe emerging advances in nanoscience, neuroscience, genetics, paleontology, microbiology, mathematics, planetary science, and plant biology, among other areas. The authors examine how their disciplines might address some of this century’s most critical challenges, such as treating an explosion of degenerative neurological disease and providing food, fuel and a habitable environment for a global population predicted to reach nine to ten billion by 2050.

Uh-huh, yeah, sure.

 

[southwestforests]

I'm going to take the liberty of copying this and attaching PDF to emails to my 84 year old Dad who was USN's first medical retirement in 1985 with ME/CFS and was told more than once in early 1980s by US Military Psychiatrists that this disease is NOT psychiatric but IS documentably physical.
And to my friend Julie in UK who went from having long covid to being diagnosed with ME/CFS.

 

[bad1080]

further reading on the PACE trial and its problems: https://me-pedia.org/wiki/PACE_trial

 

[southwestforests]

further reading on the PACE trial and its problems: https://me-pedia.org/wiki/PACE_trial

I'm not seeing these from 2016 on Sense About Science referenced in the links on that page,

https://senseaboutscienceusa.org/editorial-on-pace/

Sense About Science USA
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Editorial: On PACE
by sasusa | Mar 21, 2016 | Study design | 39 comments

https://senseaboutscienceusa.org/pace-research-sparked-patient-rebellion-challenged-medicine/

PACE: The research that sparked a patient rebellion and challenged medicine
by sasusa | Mar 21, 2016 | Study design | 44 comments