New AMMES.org website - Erica Verillo

medfeb

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I don't think this was posted elsewhere but if so, please let me know.

The American Society for ME and CFS (AMMES), founded by Erica Verillo, has put up a new website with information about the disease, its diagnosis and treatment.

I haven't gone through everything but it looks quite comprehensive and useful

Erica is also the author of Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition (Kindle Edition). 2012.
 

Pyrrhus

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AMMES October Newsletter is now available:
https://mailchi.mp/ca3cbf851309/ammes-oct-newsletter-get-your-medical-needs-met-5173145?e=[UNIQID]

Excerpt:
AMMES said:
Over the past two years AMMES has distributed over $80,000 to severely ill ME/CFS patients who are so impoverished that they can’t afford food, clothing, and shelter and face a struggle for survival on a daily basis. That struggle can overshadow all others – including the search for physicians and treatments – while patients scramble for their basic needs. The effort to stay alive is all-encompassing.

How will these patients get food to eat, pay their rent, and buy such bare essentials as shoes? Who will help them when their options run out?

We will.

Read more about how AMMES helps people with their basic needs here>>

AMMES is a 501(c)(3) national nonprofit. Your donations are tax deductible.

You can donate to our financial crisis fund HERE.
 

Pyrrhus

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Related discussion:

AMMES Connect. Modeled after Craigslist but offers services tailored specifically to the ME/CFS community.
https://forums.phoenixrising.me/thr...d-specifically-to-the-me-cfs-community.80173/
AMMES Connect is the American ME and CFS Society’s brand new service. It is modeled after Craigslist, a popular classified advertisements website with sections devoted to jobs, housing , items wanted, services, community events, rides and free stuff, among others. AMMES Connect is similar in structure, but offers services tailored specifically to the ME/CFS community.

Like Craigslist, AMMES Connect allows people to post when a service or item is OFFERED and when it is WANTED. All services and items must be offered free of charge. People coming to AMMES Connect can search by locale and category.
 

Pyrrhus

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AMMES January 2022 newsletter is now available:
https://mailchi.mp/697da26410eb/ammes-oct-newsletter-get-your-medical-needs-met-5339809

Last year was, by all accounts, a doozy. The nation endured a spate of tornadoes, fires, floods and, of course, the pandemic. The fact that we made it to 2022 seems like a minor miracle.

Despite the many challenges of 2021, AMMES continued to grow. We welcomed two new board members: Mark Zinn and Tamara Staples. Mark is well known in the research community for his groundbreaking work on brain connectivity in ME/CFS patients. Currently, Mark is a director and investigator at the NeuroCognitive Research Institute in Chicago, IL, where he conducts studies which model brain connectivity in patients using 3-D neuroimaging EEG techniques.
[...]
AMMES also added two new resource pages to the website. Our informational page about COVID-19 and ME/CFS includes physicians’ recommendations regarding the COVID vaccine for people with ME/CFS, patient surveys on how the vaccine has affected them, research articles on long-Covid and ME/CFS, related news items, and tips from doctors on how to treat patients with ME/CFS who contract COVID-19. You can find the page here: https://ammes.org/covid-19/

Last year, we launched a page devoted to interviews with ME/CFS doctors and researchers. Interviews are a great way to keep track of what researchers in the field are doing, and to get the details on how specialists are currently treating the disease. We will be expanding this section over 2022, adding more interviews as we go along. https://ammes.org/interviews-with-doctors-and-researchers/

The AMMES financial crisis fund has been going strong. In 2021 we distributed $41,143.86 in badly needed assistance to severely ill ME/CFS patients. We helped with rent (which was the most frequent request for financial aid), food, medical costs (including consults, ambulance fees, wheelchairs, and prescriptions), household expenses, utilities, and other basic needs. Read about the fund here: https://ammes.org/ammes-financial-crisis-fund/