frozenborderline
Senior Member
- Messages
- 4,405
I got this email from MEAction and thought id Share the text here as it seems to be an important campaign.
You've signed the #NotEnough4ME petition and I'm deeply grateful for your support. We already have over 5K signatures demanding Dr. Koroshetz and the NIH take action now for ME research!
But I need to ask something else from you.
I'm looking for at least 100 people who would be willing to take part in a virtual action we are planning for the next phase of this campaign. We have just one week to get ready, and I really need you to join us.
I promise it will be simple. I can’t say too much here but it will involve:
Email me back “I’M IN,” and I’ll explain everything you need to know.
You can also hear more about our virtual action at our “secret” Tuesday community meeting, but it’s not required: http://bit.ly/NotENough4ME-meeting
Can I tell you a secret? I hate posting things to social media. I’d be perfectly content to never need to be “online” in this way. You may not share these feelings, but in case you do I want to be clear I need you, Walker, to take this virtual action with me not because it is comfortable, but because it is bold.
In doing this we unite our names, faces, and voices in common purpose together. This must be the beginning of the end of the NIH’s shameful neglect of our community.
Last night, I gathered in a living room with the friends and family of a person with severe ME who died this week. It was emotional for me to be able to hug and personally thank the circle of devoted friends and caregivers who had tried so hard to support this person in a fight with such a cruel disease. There was so much love, and light, and pain in that room. I’m done with the empty bureaucratic excuses recycled by the NIH and Dr. Koroshetz. We all know the actions that need to be taken to end this crisis, and that what they are doing now is not enough to save lives.
Will you be one of the hundred that join me in putting our faces and voices to this fight?
In Solidarity,
Ben HsuBorger
Campaigns Director
#MEAction"
You've signed the #NotEnough4ME petition and I'm deeply grateful for your support. We already have over 5K signatures demanding Dr. Koroshetz and the NIH take action now for ME research!
But I need to ask something else from you.
I'm looking for at least 100 people who would be willing to take part in a virtual action we are planning for the next phase of this campaign. We have just one week to get ready, and I really need you to join us.
I promise it will be simple. I can’t say too much here but it will involve:
- Taking at least a 15 second video of yourself
- Posting it to social media at a specified time
- Sharing the video file directly with us.
Email me back “I’M IN,” and I’ll explain everything you need to know.
You can also hear more about our virtual action at our “secret” Tuesday community meeting, but it’s not required: http://bit.ly/NotENough4ME-meeting
Can I tell you a secret? I hate posting things to social media. I’d be perfectly content to never need to be “online” in this way. You may not share these feelings, but in case you do I want to be clear I need you, Walker, to take this virtual action with me not because it is comfortable, but because it is bold.
In doing this we unite our names, faces, and voices in common purpose together. This must be the beginning of the end of the NIH’s shameful neglect of our community.
Last night, I gathered in a living room with the friends and family of a person with severe ME who died this week. It was emotional for me to be able to hug and personally thank the circle of devoted friends and caregivers who had tried so hard to support this person in a fight with such a cruel disease. There was so much love, and light, and pain in that room. I’m done with the empty bureaucratic excuses recycled by the NIH and Dr. Koroshetz. We all know the actions that need to be taken to end this crisis, and that what they are doing now is not enough to save lives.
Will you be one of the hundred that join me in putting our faces and voices to this fight?
In Solidarity,
Ben HsuBorger
Campaigns Director
#MEAction"